Turner Syndrome Support Group
Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births. Instead of the normal XX sex chromosomes for a female, only one X chromosome is present and fully functional. In Turner syndrome, female sexual characteristics are present but underdeveloped.
My daughter is 14. Is on birth control now for about 2 years. Dr did a bone density scan which shows osteoporosis on her hip. Do any of you turners have this and are you taking meds for it??
Depending on the severity of your daughters bone loss, a doctor can help you choose an appropriate treatment. I have osteopenia, which is bone loss at a level that is less than osteoporosis and is basically the step before osteoporosis if not treated. I've had this condition since I was 12, so ten years now, and the treatment has always been for me to take calcium pills with vitamin D every day. For more extreme cases of bone loss than my own there are actual medications which can help stabilize and possibly reverse the condition. That is something to discuss with your doctor.
It's important that you do treat this because bone loss doesn't just put her at higher risk for injury due to brittle bones but can effect things like her dental health too. Loss to the bone in the jaw can cause the gums to recede. That's something my dentist told me.
However, there is no need to worry at your daughters age. If you speak with your doctor, pick a treatment with the appropriate aggressiveness to match her level of bone loss and follow through, I think you will find that the condition stabilizes and even gets better with time. It's just something else to monitor. I know how long that list gets for us TS girls.
Best wishes to you. I hope this helps and wasn't overwhelming. I've learned a lot about this since I've been dealing with it for 10 years myself.
Depending on the severity of your daughters bone loss, a doctor can help you choose an appropriate treatment. I have osteopenia, which is bone loss at a level that is less than osteoporosis and is basically the step before osteoporosis if not treated. I've had this condition since I was 12, so ten years now, and the treatment has always been for me to take calcium pills with vitamin D every day. For more extreme cases of bone loss than my own there are actual medications which can help stabilize and possibly reverse the condition. That is something to discuss with your doctor.
It's important that you do treat this because bone loss doesn't just put her at higher risk for injury due to brittle bones but can effect things like her dental health too. Loss to the bone in the jaw can cause the gums to recede. That's something my dentist told me.
However, there is no need to worry at your daughters age. If you speak with your doctor, pick a treatment with the appropriate aggressiveness to match her level of bone loss and follow through, I think you will find that the condition stabilizes and even gets better with time. It's just something else to monitor. I know how long that list gets for us TS girls.
Best wishes to you. I hope this helps and wasn't overwhelming. I've learned a lot about this since I've been dealing with it for 10 years myself.
Depending on the severity of your daughters bone loss, a doctor can help you choose an appropriate treatment. I have osteopenia, which is bone loss at a level that is less than osteoporosis and is basically the step before osteoporosis if not treated. I've had this condition since I was 12, so ten years now, and the treatment has always been for me to take calcium pills with vitamin D every day. For more extreme cases of bone loss than my own there are actual medications which can help stabilize and possibly reverse the condition. That is something to discuss with your doctor.
It's important that you do treat this because bone loss doesn't just put her at higher risk for injury due to brittle bones but can effect things like her dental health too. Loss to the bone in the jaw can cause the gums to recede. That's something my dentist told me.
However, there is no need to worry at your daughters age. If you speak with your doctor, pick a treatment with the appropriate aggressiveness to match her level of bone loss and follow through, I think you will find that the condition stabilizes and even gets better with time. It's just something else to monitor. I know how long that list gets for us TS girls.
Best wishes to you. I hope this helps and wasn't overwhelming. I've learned a lot about this since I've been dealing with it for 10 years myself.
Melissa