Turner Syndrome Support Group
Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births. Instead of the normal XX sex chromosomes for a female, only one X chromosome is present and fully functional. In Turner syndrome, female sexual characteristics are present but underdeveloped.
Hi I am Connie.
I found out that I have TS at the age if 18. I was a big blow to me. Lately things have been bothering. No one I know has TS so it is hard for anyone to relate to my feelings. I just need someone that knows what I am going through.
I found out that I have TS at the age if 18. I was a big blow to me. Lately things have been bothering. No one I know has TS so it is hard for anyone to relate to my feelings. I just need someone that knows what I am going through.
whittywords
I'm here! I was diagnosed at 12 and can definitely relate to suffering this major blow at a time when you're really expecting to come into your own. I'll listen and offer any insight I can. We've got you.
Charlotte7598
Rest assured that people here know what you're going through here- I was diagnosed when I was 10. Feel free to message me any time you need someone to talk to!
ginny30
I felt the same way when I was diagnosed at 16. We are here for you and remember you're not alone.
Delana1990
I'm also here! Message anytime. It occurs to me since I joined yesterday that things were maybe easier for me in a way since I was diagnosed at birth, but I'm always here to talk! I feel like all of us know what those blows feel like, though.
deleted_user
I just got diagnosed today! But, my endocrinologist told me she felt I have it about a month ago during my first visit. I cried for a couple days over it when I first was told and researched about TS. And, I'm 22. You're not alone!! Message me anytime you like.
Storyscribe
I was diagnosed at birth. I know how hard it is to get this news when your young. I'm here if you want to talk.
pk123love
Hi
Peepleshm
I have been feeling the same way. I found out last year that I have ts and I haven't been able to find anyone who can I can relate to and talk to message me if u want to
Bailey2013
I was diagnosed at 30 imagine that. I have a 45x fragmentation so all the symptoms except I'm 5 3" and don't really have any Turner's features. Going your whole life knowing somethings wrong, and doctors treating you like some kind of hypochondriac is horrible. I even had an endo look me in the face and say I didn't have it, made him test me. So far all you girls out there who have the symptoms get testing done even, just because they say you don't look like you have it, that means nothing.
Peepleshm
I was Diagnosed at 14 with ts and feel the same way you do. Am glad to talk just message me
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