Turner Syndrome Support Group
Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births. Instead of the normal XX sex chromosomes for a female, only one X chromosome is present and fully functional. In Turner syndrome, female sexual characteristics are present but underdeveloped.
Does any one else have trouble in the dating department?
I did not date much before I met my husband but when I found him everything clicked and we were engaged a year later. Now our 4th wedding anniversary is coming up on Sept 16th. :-)
I hope this helps other girls out there.
Hang tough ladies- I met my husband at age 25 on match.com and only went on a small handful of unsuccessful dates before that.
My advice is to share small detailsover time. Hypothyroidism. And endocrinologist appointment. A cardiologist appointment. Perscriptions. That said, I did not tell my boyfriend/fiancee/husband all about TS until very soon after we got engaged. And he could not have handled the conversation any better - or been any sweeter or more protective of me.
Hugs to all.
For me most of the time I dont look at my turners as a big deal. Its moreso when people point something out to me or make a short comment that bothers me most. I dont mind if someone has a respectful question and asks in a sensative way. Sometimes I like people to understand a bit better and usually I get a positive reaction from people when I talk about it openly.
I hate being treated "differently" or like im not able to do something. At the same time, I like people to realize that I do have some limitations and also respect that.
I'm glad you found this board and Im sure reading through some of these posts will prove helpful!
Anyway,I just wanted to say that when I was around 20 I pushed myself to date a lot just for the fun of it (and also because I guess I really wanted to find prince charming early!) and initially I thought my experiences with men were going to be affected by my condition. I wondered how on earth would I tell them about the fact that I could not have children or that I have to take hormone replacement. I was really terrified about it, but to my surprise, almost all of the guys I dated (with the exception of one really, who I had no business dating in the first place, because he was not a nice person!) handled it very well. Immediately most of them said adoption was a wonderful alternative and they reassured me that it was not an issue whatsoever.
To be honest, I've found women to be more judgmental /less sympathetic about my condition than men. Anyone else have that experience?
I've found most men to be very understanding and supportive, including my fianc who could not possibly be more compassionate or supportive - I finally don't feel alone about my diagnosis because he's right here with me ..what a relief that is.
So my advice is not to worry about Turner's or infertility or any of the things you fear will be "deal breakers" for prospective boyfriends and just be yourself. Your condition has allowed you to become a stronger, wiser person and that in itself is a perk to dating you! Just be you :)
Thank you for the words of encouragement. It can be difficult to know how to handle dating in general, yet alone when you have something that truly makes you worried. I have found the same thing about the guys that I have dated, though there have been few so far. The men tend to be more sympathetic than some women. Although, I do have some wonderfully supportive gal friends. I sometimes wonder if I put off dating because I've been so focused on school and beginning my teaching career. That's another story completely though. :-)
I think that no matter what, if the person loves you, it won't be a deal breaker. I can understand someone needing time to process, I certainly did when I found out that I couldn't have children, but if they can't accept that in the end, then they aren't accepting you fully either.
If you don't mind my asking, is there a reason you haven't had genetic testing done to find out if you really do have TS? A diagnosis, if you do have it, would open doors to doctors being able to help you keep on top of the basic health concerns for TS women. It sounds like you are lucky and have pretty good health and are already on top of it, but it's never a bad thing to be aware.
Again, thanks for the encouraging words,
Beth
My health is actually pathetically poor, lol, but that's a whole other story. I have had testing years ago when I was first diagnosed with primary ovarian failure and it was negative. Its just that so many doctors I've seen after the fact have said I fit a lot of the characteristics, etc. Ironically enough I'm actually in a big university hospital right now because I have pancreatitis and since I'm here they're doing a ton of genetic testing on me. They're fascinated by me, I guess! I told them to revisit the possibility of Turner Syndrome so they are, and probably testing me for things like Fragile X and other conditions that would cause my ovaries to fail. I'm with you on that - if I could have some clarity at all , it would really give me such peace of mind. I've been a mystery to myself and my doctors ever since I turned 16 and still had yet to have a cycle. Heres to hoping they figure it out this time!:)