Trigeminal Neuralgia Support Group
Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.
pitmum
I was diagnosed with TN 3 1/2 years ago. I am currently on 2700 mg Gabapentin, 120 mg Cymbalta, and 450 mg Oxcarbazepine and I still have pain daily.
My neurologist will not prescribe me pain meds.
I have been getting Percocets from a friend just to take when the pain is completely unbearable but even those do not help anymore.
I am on day 2 of a flare up.
The one thing that does help is marijuana and I found that out by accident. friend of mine was smoking a blunt and I took a hit (one hit)...10 minutes later I was like "Hmm that's odd. I'm not hurting at all!!"
The problem? Marijuana is still illegal in NC, even with a prescription.
What, if anything, have any of you used that help lessen the pain???
My neurologist will not prescribe me pain meds.
I have been getting Percocets from a friend just to take when the pain is completely unbearable but even those do not help anymore.
I am on day 2 of a flare up.
The one thing that does help is marijuana and I found that out by accident. friend of mine was smoking a blunt and I took a hit (one hit)...10 minutes later I was like "Hmm that's odd. I'm not hurting at all!!"
The problem? Marijuana is still illegal in NC, even with a prescription.
What, if anything, have any of you used that help lessen the pain???
deleted_user
i'm so sorry to here about you pain. I to have a nuro who won't perscribe pain meds. he is my 4th nuro cause i don't tolerate meds well and most of my nuro just give up on me. so soon i will be off to a new one. but i think that maybe you should look for a new nuro because with everything that you are taking and nothing is helping says maybe he's not listening to you. you know your body better than he does. i am know seeing a nuro sergion and an gamma knife special list. the gamma knife specialist is very helpful and understanding. you don't have to go in crying and being hystarical for him to help you. i'm sorry again that your in so much pain i totally understand. my pain is constant and the nerve meds don't help me plus they make me so tired i can't funciton. deffinetly get a new nuro please. i sleep on ice sometimes that helps a little.
juliettagirl
guess what? I want some pot, too. Only thing is --how can I score some. I am 63 and out of the loop. But it is not impossible to do so. I dare not ask any co-workers--do not want any repurcussions. I so empathize w/your pain. It is agony. Yes, I am less meds than you, but they do not seem to be helping. As far as pain med, tramazdone (I think) is less heavy than percoset. I hated taking percoset. It is not right for the doc not to precribe pain meds. They have no idea what we go through. I hope you can find a caring doc who will give you a pain med.
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