Hi, I first had symptoms of TN in 2017.
As with most sufferers, it started with what I thought was tooth ache.
so I visited my dentist, who did an x-ray, and told me my teeth were fine. He said that I was
most likely grinding my teeth whilst asleep.
I accepted his account, the pain went away, but returned a couple of months later.
My pain is what I can only describe as a creeping intense pain which numbs the side of my face.
starting in the back of my lower jaw, then quickly rising up to my eye. Lasting anything from 5-20 mins .
I then decided to google my symptoms ( not always recommend) .
Most of the symptoms coencided with what I had. However I thought it best to consult my GP
My GP had about as much knowledge as me ! No actually I knew more than her. All she did was google
just as I had done.
She then asked me! what I thought about what steps to take !
I said that I was aware that it’s usually pain relief. But I said that I didn’t in the intereim want to start
on strong medication. She said well I will just give you a prescription for Carbamazepine 100mgs.
I was advised to take if the pain became unbearable. She never suggested an MRI, ( but I was secretly
thankful ) I am a MRI Radiographer ( slightly claustrophobic) so I wasn’t that bothered.
But having read that other people have said that it doesn’t always show anything. That is true, but sometimes
it does show one of the cerebral veins enlarged. I have read about various types of surgeries, I hope I
never get to that stage, but I’m ever the optimist.
I have very quickly become aware of triggers which can affect this condition.
In my case so far I have stopped having Bananas ( potassium apparently the culprit ) also turmeric tea, and anything
that is too cold, even air conditioning, which I only have in my car.
So for me, it will be trial and error, cope with the pain if not too bad. Take vitamin B. And to become aware of any other triggers.
And when the need arises, I shall be taking my prescribed medication, not too soon I hope.
I hope your not all falling asleep! But it’s so good to be able to speak to others who are unfortunate
to be suffering from the same debilitating condition.
Hi Everyone I am almost 50 and a few years ago I came down with TN. Effects my left back tooth and left side of face usally attacking at night mostly feels like an ungodly toothache that stabs. I refuse to take the meds that kill pain until I figure out what the cause is. So I am tracking my symptoms. I have had several dental procedures however I was told it was not from that. I had an MRI with...