Trigeminal Neuralgia Support Group

Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.

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pabuddy 09/29/2008

My neurologist wants me to have gamma knife surgury. I couldnt eat yesterday due to the TN pain. Has anyone had this surgery>

deleted_user 09/29/2008

Hi - I had gamma knife in December. I had no noticeable triggers (aside from stress that my neuro said wasn't a trigger!). The worst part was the injections in my head in order to attach the frame.

Since then I had attacks 6 weeks later (I was having attacks every 2 weeks). Then it was sporadic. Now I have been pain free for 2 months and have started to decrease my meds. I have no side effects, but have noticed that whenever I get a regular headache it starts on the upper right of my forehead the same place that my TN starts.

My doctors were great and made the whole experience perfect

deleted_user 09/30/2008

Hi: I had it done about 3 weeks ago. The surgery itself was bad at all. They put me out and when I woke up the frame was attatched. I had no pain at all during the procedure. I am still having attacks though. I go back to my neuro next week. I was told that it could take up to 2 months to actually see any results. Good Luck to you. Like I said it wasn't bad..
Chrissy

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