Trigeminal Neuralgia Support Group
Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.
I have been on carbamazapine since the middle of May. It has taken away the major attacks but I still have trouble eating on the left sideand sometimes talking gives me pain in the tongue.
I have been afraid to go to the dentist for fear that I will jump if he hits a trigger spot and will injure my mouth.
Today The neurologist gave me gabapentin 300 mg to take along with the carbamazapine on an as needed basis and certainly before I see the dentist. I tried it 2 hours before my evening meal and the pain persisted..
To make a long story short I would like to know if anyone else is on this combination of drugs and whether it has been effective.
I have been afraid to go to the dentist for fear that I will jump if he hits a trigger spot and will injure my mouth.
Today The neurologist gave me gabapentin 300 mg to take along with the carbamazapine on an as needed basis and certainly before I see the dentist. I tried it 2 hours before my evening meal and the pain persisted..
To make a long story short I would like to know if anyone else is on this combination of drugs and whether it has been effective.
This condition, though symptons are generic, has a diferent remidy for everyone.
As for the dentist, I have to bush my teeth the moment when there is a lul in TN activity or tigger point sensitivity. I haven't been able to visit a dentist for 3-4 years now execpt to verrify that a TN attack wasn't an absesed tooth. (That was a painful X-ray) Just touching my lips is to much to handle.
Wish I had some good advise for you. Hang in there.
At least TN is a great diet, I didnt need to loose but 15 lbs. I'm well past that goal and now must eat lots of ice cream to gain weight. I eat a quart a week without any weight gain-damn.
May you find your combo soon Ingelo. Sound the thistle when you do!!!
Mike