Tinnitus, Deafness and Ear Problems Support Group
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
It wasn't easy getting to where I am. It wasn't fast, either. It took time. After the first time I was focused on something else and realized I hadn't thought about the T for a while, I knew that was the answer for me. I could still hear the T, but it wasn't driving me crazy.
I didn't want to be defeated by a noise. I started forcing myself to listen to other things -- the microwave, the computer, the radio, whatever. I kept myself really busy (and still do). The more I focus on something else, the less I notice what's going on in my head.(I have a lot more than just the T going on.)
My T is loud and clear everywhere -- inside, outside, at church with the organ going full blast, etc.
I am convinced that if I was focused on my T all the time, it would drive me crazy. I just don't want to do that to myself. I don't want the noise to win.
I still feel a brief panic when my T changes, worrying that it will get worse. I would still love to have it gone. But there's not a thing I can do to get rid of it or to even make it lower in volume. The only thing I can control is my reaction to it.
When this first started, if you had told me I would get to a point where I didn't notice it, I would have told you you were nuts. I didn't believe it was possible. But now I can assure you it is possible. I'm not saying it's easy. It takes time. I don't remember how long it took, but it took a while -- long enough for me to try everything I could find that claimed to cure it.
Good luck to you. I hope you get a break soon. I'll keep you in my prayers.
It isn't very hard for me to stay distracted. I work full time, and we are very busy at work. I have grandkids. I have lots of hobbies.
I've really come to terms with the T now, though, so when I'm not distracted, the T doesn't cause me any distress. There is nothing I can do about it. I think it will be a part of me for the rest of my life. We can learn to ignore it. How many moms do you know whose kids drive you crazy but she seems to completely tune them out?
I feel very blessed to be where I'm at today. My prayer is that everyone here will get to that place and provide encouragement for new sufferers.
That is very sweet of you to pray for us on here. I do, too, but I should more often! I have had some answer to prayer in the Mysoline generic I now take--no T and no side effects so far, thank the Lord. Hope it lasts.
Charles--What is the connection with wheat bread to make your ears quiet??
My T started back in January, in one ear, out of the blue, what the Dr. thought was due to minor hearing loss. I had a horrible ENT, who, after I had an MRI that came back fine, said there was nothing more he could do for me, was referred to a new one who is my savior as far as I'm concerned because he CARES! I started feeling better around the end of April, beginning of May. And by better, I mean that I was sleeping, and was beginning to control my T, not let it control me as it was slowly disappearing, along with the pressure in my head.
My new doctor was willing to try different things and work with me to help me. Luckily, what he suggested first worked! I've been using Flonase Nasal Spray (prescribed), and Lipoflavonoids (3 a day, after every meal). That's it. Now, I can sleep without the sound machine, and don't hear any T at all. Occasionally, I'll hear a distant high-pitched ringing, but the lower ringing that was driving me insane is completely gone, as is the intense pressure in my head, which was the real culprit of my problems, I think. I haven't changed my diet much; emotional eating has made me gain weight, which I'm very upset about as I'd lost over 60lbs before this happened. I'm working to lose it again, but it's been a struggle.
I did notice that after walking with my iPod one day (I use in-ear monitors because the outer ones are horrible) I heard a low ringing in my non-T ear. I was nervous, but it went away, and I figured maybe I was listening to my music too loud, so I lowered the volume and it hasn't happened again since. I don't listen to it really loud, but I think I didn't realize that it was louder than I need to have it, so I'm now lowering the volume to help my ears.
I realize that everyone's T is different. The Lipoflavonoids also might not work for everyone. I hear that all the time that they don't work, but they did for me. My doctor keeps them in his office for his patients that suffer from T. He says that they help more than just the ears. So, I'm going to keep taking them.
I sympathize with those still suffering. I hope that you find what works for you. Number one is a caring doctor who wants to help you. I've been seeing my doctor every month or couple of months. I also had another hearing test that was the same, so my hearing didn't get any worse, thank God. I remember feeling like I was going deaf when it first started. I was in tears every day and sleep deprived and just miserable. I'm the opposite now thanks to my new doctor (who is now my new ENT.) I'm not going back to the other one.
So, I guess what I'm trying to say is don't give up. There is hope. :)
I imagined a gun to my head.
Then I thought, people must have this, famous people too and sure enough, William "Tribbles" Shatner from Star Trek was amoung them.
I used my inability to sleep to blur my vision by googling Tinnitus in every imagnable format.
Voo Doo cures, herbs and spices (no KFC either) and hypnotherapy (bock like a chicken) were amoung the options.
I have found relief, be it temporary or diversionary, from my Tinn with things like my fridge when it kicks on to cool, the Wal-Mart Photoshop DO IT YOURELF (bec the employees SURE AS HELL cant help you) machines as they wirrrr their fans & interior cooling devices
and my dogs when they snore and mini yip in their sleep.
Open areas are best for me: Beach wind and ocean waves mask my Tinn to sheer pleasure...Illegal to sleep on the beach but Ive considered it.
Main thing Ive done is to sit still in my room and listen to the eeee of my Tinn then be able to HEAR a car or motorcycle outside and know I can still hear.
I consider that eeeee to be my baseline of NO AMBIENT NOISE at night then resign myself to saying WELCOME TINN, HAVE A SEAT BUT DONT BLOCK THE OTHER SOUNDS IN THE ROOM
The fact that I can still hear, bilaterally, is something that I focus on more than the annoyance of the Tinn.
Tinn's eeeeee is here to stay so Ive made it feel comfortable but not welcome - it's a growling dog that I refuse to let bite me.
Also thanks for sharing your story JustShoot and others as well... I'm at the anxiety/stressed phase since I just started dealing with this a month ago... hoping to find friends for support.
I've had T since April 2012 & I've been through the months of not being able to cope (coped really badly).
It's now almost 7 months and I've read so many conflicting theories about the causes and also what to do to cope when it's bad.
I have found that tea makes mine go crazy (I used to drink a lot of tea before getting tinnitus) but apart from that I'm just not sure.
After purchasing 6 different types of pillow speaker I have found one that works to an extent - so if I'm having a bad night it helps.
I also play purple noise on the bad days.
But there are a lot of good days when mine is just a 'tinkle' and there are even days when it's gone altogether - and believe me I listen hard for it... it's gone completely on those days.
I think one of the cruellest aspects of tinnitus is that there is no normal recovery curve. I've been convinced so many times that it really is going - going to disappear permanently & then the following day it can come back with a vengeance. This also makes 'habituation' difficult.
I'm finding the tinnitus threads on this forum really interesting & will post again if I find something that helps me as it may help others.