Tinnitus, Deafness and Ear Problems Support Group
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
I suffer everyday for three years now. Right at this moment while writing this, im sitting in my office with an MP3 playing on earbuds to mask the Tinnitus with cricket sounds i downloaded off of Youtube. I have been listening to this sound all the time. Outside and inside.
But im not going to use this opportunity to talk about my self. My advise to you is to not expect anything at all other than putting "easy" money into both your audiologists and especially your ENTs pockets. These professions are useless when it comes to Tinnitus. But.....you will receive something for your visit and it will come for sure from your ENT.....the dreaded statement...."you just have to learn to live with it!". Your audiologist may say the same, but i have found ENTs tobe a bit crude a profession.
anyway. Not much here other than hang in there and take it a day at a time. I keep praying for a cure...and dreaming what it would be like to have the energy and motiviation stripped from me with this Tinnitus over the years of having it. I feel i would be the man i once was....reduced now....
Good Luck.
Things that have helped me are:
Masking/mixing with water noises or white noise, esp at night
Being in sound at all times (I have the radio on all day)
Meds for sleep, anxiety, and depression
Eating only natural sugars, not processed sugar or processed foods with MSG or "natural flavors" in them
Seizure meds
Helichrysum essential oil (therapeutic grade) ingested and rubbed on the back of my neck before bed
A sympathetic doctor or audiologist so you don't feel so alone
TRT
Learning to focus on other noises or things going on instead of the sounds in my head
Talking to people here on DS
My T does stop sometimes and it often changes sound from day to day--locusts, sizzling bacon, an electric whine like and old TV, a brain buzz, and so on. Sometimes it's just a hiss in one ear like air escaping from a radiator or tire.The change in sounds is hard to deal with but one thing is constant: it's always VERY high-pitched. :(
I can't read, work, or concentrate on ANYTHING, with this loud whining whistle in my ear. It's like a cross between a smoke alarm and a dentists drill. It never stops, and it never varies, other than it seems to be getting louder every day. It's not only disturbing, it's actually painful. I haven't been able to eat, and have been seriously contemplating suicide. I can't imagine living like this.
My girlfriend is on an extended trip out-of-country, and I don't have any family, so it's even worse just being alone here. Before the T, I looked forward to weeks like this, where I could just be alone in my quiet rural location. Now it has become like being tortured in a prison.
I may try to take more of the Lorazepam during the day, to ward off the terrible thoughts, but I'll need a refill soon (and probably a higher dosage than the 0.5 mg my doctor gave me).
The good news/bad news is that I am retired, so I don't have to go to work (good), except that it leaves me with big chunks of unstructured time to listen to the ringing and worry about everything (bad).
Thanks for being there/here.
Keep trying things to distract yourself or mask. Stay in sound at all times.
Your T sound or volume may shift over time. When I first got mine it was the high, super-loud loud whine of a jet engine. On a scale of 1-10 it was an 11. I still have bad days, but now my bad days are mostly about an 7 or 8 and more often a hiss or locusts than a whine.
Be careful about Benedryl. If it doesn't affect your T, great...but some people find it makes their T worse. :/
At first every day was bad, but it has aleviated to the point that I may have a couple of louder days a week. Oh, I recently saw an ENT for something else, and he suggested a hearing aid to mask the noise. I decided that after all these years, that I didn't have the desire to pursue this. But he felt it would help.
Hope that it gets better for you.
I know it's not a cure, but you specifically mentioned night time as the most troubling. This will solve that.
I now, have t 24/7 but it is mostly a low hissing sound. There are some days that it may interfere with my day, and then I use distraction and music to help me through. I have what is called Reactive t wish is not maskable, sound of any type raises the t, but I do sing in a choir and am exposed to many loud instruments. I use an ear plug when necessary. And I live a good life.
I can promise you are in one terrific group. I know you and already have have received excellent advice.
God bless you.
Had a wonderful respite last night. The T went away *completely* for a few hours, around 6 pm until I fell asleep. It was back when I woke up, but it seems a little less shrill and more of a hissing sound, which is less objectionable.
Although it's a long shot, my ENT saw the audiology test that indicated no specific cause for the sudden tinnitus, and prescribed a Prednisone series on the outside chance that it's virally induced. Last night was after my first day on the Prednisone, so I'm hoping there's a correlation there.