Tinnitus, Deafness and Ear Problems Support Group
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
Just returned from University of Buffalo Speech and Hearing Clinic.. 8 hour round trip... 2nd consultation with Dr Christina Stocking [Dr Aud].. She programmed my Widex 440 Zen hearing aids properly, and we had a nice 1/2 hour discussion besides.. She outlined a few things I needed to do before I return in a month... First I must wear my hearing aids from the second I wake out of bed, to the last second before I jump into bed at night to sleep.
She feels my inconsistent use of them is not helping me at all.
Even when I feel they are making my T go higher I must keep them in.. She says its a must if my brain is going to "reboot" and turn dow the gain from the added input.. Said it often takes 3 or more months or even more..
Also, she really wants me to stay away from here and yuku, even though I have found help and solace in both places.. She finds it remarkable how much I knew about T, hearing loss and my Widex aids etc, and I told her that HERE[and yuku] is where I learned it..
I asked her if she was afraid the "basket cases" that frequent these support forums might scare me. I notified her that I was among the worst of the "basket cases", and I was the one scaring people...
She let me know that that was not the case.. the problem is that it was keeping my focus on T, and thats NOT where it should be at this time...
So I will say bye for now, and will return in a while to let everyone know how I am doing.
I hope to be a really positive contributor one day in the near future, and by that I mean someone that is strong and supportive, not a borderline mental case in dire need of support myself.
Right now, I need to focus on improving, not on being patted on the back being told I will be ok...
I won't be ok if things don't change, and it seems I am the only one that can change anything... The nice folks here can't, doctors can't, I must do it myself.. In any case, I care very deeply about you all, you were all a very big comfort, and great teachers as well. You are all in my prayers each and every day, many of you by first names or forum monikers. I will be back sometime, and am praying I will be very much improved when I do start posting again,,, If anyone cares to email... bullet_bob@lycos.com
God bless each and every person here.... bob
She feels my inconsistent use of them is not helping me at all.
Even when I feel they are making my T go higher I must keep them in.. She says its a must if my brain is going to "reboot" and turn dow the gain from the added input.. Said it often takes 3 or more months or even more..
Also, she really wants me to stay away from here and yuku, even though I have found help and solace in both places.. She finds it remarkable how much I knew about T, hearing loss and my Widex aids etc, and I told her that HERE[and yuku] is where I learned it..
I asked her if she was afraid the "basket cases" that frequent these support forums might scare me. I notified her that I was among the worst of the "basket cases", and I was the one scaring people...
She let me know that that was not the case.. the problem is that it was keeping my focus on T, and thats NOT where it should be at this time...
So I will say bye for now, and will return in a while to let everyone know how I am doing.
I hope to be a really positive contributor one day in the near future, and by that I mean someone that is strong and supportive, not a borderline mental case in dire need of support myself.
Right now, I need to focus on improving, not on being patted on the back being told I will be ok...
I won't be ok if things don't change, and it seems I am the only one that can change anything... The nice folks here can't, doctors can't, I must do it myself.. In any case, I care very deeply about you all, you were all a very big comfort, and great teachers as well. You are all in my prayers each and every day, many of you by first names or forum monikers. I will be back sometime, and am praying I will be very much improved when I do start posting again,,, If anyone cares to email... bullet_bob@lycos.com
God bless each and every person here.... bob
Let us know how you are every other month or so.
Hugs,
Sue
I myself had the best improvement when i quit this board so i do believe the brain needs rebooting bu not focusing.. i firmly agree with that as a fact so you are doing the right thing.
Why aren't I? Good question, maybe i like to suffer......or maybe the T has gotten to low a lot of the time i'm not quite as insane from it, not even close thank god.. so yeah stay away!
All the best!
Deb
Pat
My audiologist told me the same thing.
But I have had the T for 15 years, so I know exactly why they are telling you this.
Do what they say, try not to focus on you T. You will get better.
May God Bless You, and Watch Over You Always.
IDK why audiologists always think there are "kooks" on here! As my father said, people in support groups often know more than doctors!
Thank you for promising to come back and let us know how you are doing. And thank you for the prayers!! Wishing you all the best.
I come on here because I find a sense of security knowing someone really understands and can relate to this condition. Most people do not seem to understand. The can't, because they really do not know what it is like. If I am frustrated or need help, I know I can get it here and at least get some input.
God bless you, I wish you all the best,
Sandy
I joined a couple of other social groups within DS in which some wonderful friends from this t support group joined me. Therefore we are in a social setting, not discussing t, but completely understanding each of our issues with t. Therefore no longer focusing on t, but always have another to lean on for support during any difficult period.
Wish everyone to be feeling better and finding comfort.