Tinnitus, Deafness and Ear Problems Support Group
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hyperacusis/sound sensitivity info
richannamae
1. HYPERACUSIS: These individuals have a collapsed tolerance to normal environmental sound. The term commonly used to describe this condition is 'hyperacusis'. Hyperacusis can come on gradually or occur suddenly where the patient finds themself in a state of crisis. Patients who have a collapsed tolerance to sound need to have their Loudness Discomfort Levels (LDL's) established by a hearing healthcare professional. Normal LDL's are in the 85-90+ decibel range. Patients with hyperacusis would have LDL's well below that level. The common treatment for hyperacusis is listening to broadband pink noise though sound generators (special hearing aids) which must be ordered through a specially trained doctor or audiologist who administers Hyperacusis (Tinnitus) Retraining Therapy. The therapy often costs $3000-$4000 (depending on the clinician) and typically is not covered by insurance.
There are two basic ways to deliver broadband pink noise to your ears. The best way starts with a clinician who is trained to diagnose the seriousness of your condition, explain to you the dynamics of hyperacusis, test your ears in gentle ways to determine your loudness discomfort levels (LDL), fit you with special hearing aids called noise (sound) generators that deliver broadband pink noise to your ears, monitor your progress and provide directive counseling until you recover. Treatment usually lasts 6 months. Clinicians who administer this kind of treatment were trained by Dr. Pawel Jastreboff (Emory University in Atlanta, Georgia). They are experts in treating hyperacusis and tinnitus patients. Their protocol is called Tinnitus Retraining Therapy (also know as TRT) and it has significantly helped tinnitus and hyperacusis patients recover. To learn more about TRT you might consider reading Dr. Jastreboff's book "Tinnitus Retraining Therapy." A list of TRT clinicians can be seen by visiting this website: http://www.tinnitus-pjj.com/referral.html
The second way one can deliver broadband pink noise to their ears would be to purchase the broadband pink noise CD from the network. Instead of listening to broadband pink noise through special noise generators (TRT), a similar sound can be delivered to the ear by listening to a pink noise CD. With this method pink noise is delivered to the ears through a compact CD player (i.e. walkman). If you use a compact CD player it is very important that you use open air headphones. More detail is explained in the guideline that comes with this networks pink noise CD. Pink noise can also be downloaded from the pink noise CD to an ipod. The only caution here would be that the pink noise be converted to a WAV or AIFF format.
2. RECRUITMENT: There are many more individuals who have recruitment. Recruitment is the a rapid growth of perceived loudness for sounds in the pitch region of a person who has hearing loss. This phenomenon occurs because at some decibel level, the normal hair cells adjacent to the damaged hair cells (corresponding to the frequency of a hearing loss) are "recruited." At the decibel level at which these normal hair cells "kick in," perceived loudness shoots up rapidly, causing discomfort. In other words, at one point the person cannot hear the sound because they have hearing loss (in that frequency), then when the sound reaches a certain loudness and/or frequency the person is blown away. Once they finally hear the sound, it is perceived as far too loud. Recruitment is a common phenomenon in cultures where the majority of their lives have been saturated with too much noise like our Western culture. Common treatment is the same as it is for hyperacusis unless the persons hearing loss is so pronounced that listening to broadband pink noise would be of no benefit to them.
3. HYPERACUTE HEARING: Then there are individuals who are sound sensitive at birth but it is only specific to certain frequencies heard at loud levels (typically above 70 decibels). It may seem like we are splitting hairs here but remember the key words with hyperacute hearing are sound sensitive to specific frequencies heard at loud levels. These frequencies are typically labeled 'problem' frequencies. Autistic children are good examples of this. They can tolerate some sound at normal or even loud volumes but some frequencies are intolerable. Commonly autistic children, children who are marginally autistic, or non-autistic individuals who have hyperacute hearing are treated with auditory integration therapy (AIT). AIT takes regular music and filters out the problem frequencies through a special machine called an audiokinetron. Somehow this therapy seems to 'retune' their ears and normalizes their hearing tolerances. The music is listened to at decibel levels which can peak up to 90 decibels. This creates a problem for the hyperacusis patient. The therapy is too loud and only worsens the condition of the hyperacusis patient whose Loudness Discomfort Levels have been compromised. Hyperacusis and recruitment share part of a common pathway but in some ways we are very different and our retraining therapies run very much a different path.
Phonophobia often develops with an individual who has a significant collapsed tolerance to sound. They not only fear the sound of the environment they are experiencing in real time (right now) they worry about the sound that future events of the day or in the near future will produce. Phonophobia can take over ones life and make one feel they need to isolate themselves to survive. This is a recipe for disaster. It is critical that we keep our ears active to rebuild our tolerances to sound. That is why broadband pink noise is so crucial to bringing us back to the mainstream of life.
4. MISOPHONIA: (dislike of sound) has often been thought to be hyperacusis. This is not true. Let us be clear here. A hyperacusis patient can have a strong fear of sound (phonophobia) or a specific dislike of specific soft sounds (misophonia) but neither one of these symptoms stand alone as hyperacusis.
Hyperacusis is a collapsed tolerance to normal environmental sounds. They hyperacusis patient may or may not have phonophobia and/or misophonia. If the hyperacusis patient IS also dealing with phonophonia and/or misophonia then their clinician needs to address these issues is addition to treating the patient for hyperacusis. It is also important to note that a person can have phonophobia and/or misophonia and not have hyperacusis at all. Sound confusing. Let's talk...
We will discuss forms of misophonia. They are not a separate catagory of sound sensitivity because the issues we are about to talk do not involve loud sounds. Some individuals are not sensitive to loud sounds (in other words they have normal loudness discomfort levels - LDL's) but they are unable to tolerate the sound of people eating or chewing. Oddly enough they have no problem tolerating the sound of their own eating. These individuals have a difficult time eating with their family and friends and some insist on eating all by themselves. They become irritated or enraged at meals and sometimes. This is not hyperacusis. The patients primary goal would be to neutralize or refocus the dislike they have of these specific sounds. Most of these individuals live very normal lives with the only exception of being unable to tolerate all the dynamics of other people eating. Often these individuals have been unsuccessful finding any information about this condition. To the best of our knowledge no articles have been written in any qualified medical journal and no studies or research has been done about this. Patients seeking treatment from their clinician may have to copy the information from this website to help their doctor understand what is taking place here. Treatment for these patients comes from clinicians who have a specific protocol for misophonia. Search the network message board using the word 'misophonia' to learn more about this problem and protocols suggested. Usually these individuals are sensitive to particular sounds which are not loud in volume. For example, some individuals have a hearing sensitivity to certain consonants (i.e. s, t, p, c). Once again, although this is a sound sensitivity issue, this is not hyperacusis. It is misophonia.
Misophonia is a symptom which is misunderstood. The word 'misophonia' was invented by Dr. Pawel Jastreboff to help clear some of the misunderstanding. Aside from a misophonia protocol it is not clear whether broadband pink noise helps the patient improve their dislike of sound. Some individuals with misophonia have been diagnosed with an obsessive compulsive disorder (OCD) and have sought treatment from a psychotherapist
There are two basic ways to deliver broadband pink noise to your ears. The best way starts with a clinician who is trained to diagnose the seriousness of your condition, explain to you the dynamics of hyperacusis, test your ears in gentle ways to determine your loudness discomfort levels (LDL), fit you with special hearing aids called noise (sound) generators that deliver broadband pink noise to your ears, monitor your progress and provide directive counseling until you recover. Treatment usually lasts 6 months. Clinicians who administer this kind of treatment were trained by Dr. Pawel Jastreboff (Emory University in Atlanta, Georgia). They are experts in treating hyperacusis and tinnitus patients. Their protocol is called Tinnitus Retraining Therapy (also know as TRT) and it has significantly helped tinnitus and hyperacusis patients recover. To learn more about TRT you might consider reading Dr. Jastreboff's book "Tinnitus Retraining Therapy." A list of TRT clinicians can be seen by visiting this website: http://www.tinnitus-pjj.com/referral.html
The second way one can deliver broadband pink noise to their ears would be to purchase the broadband pink noise CD from the network. Instead of listening to broadband pink noise through special noise generators (TRT), a similar sound can be delivered to the ear by listening to a pink noise CD. With this method pink noise is delivered to the ears through a compact CD player (i.e. walkman). If you use a compact CD player it is very important that you use open air headphones. More detail is explained in the guideline that comes with this networks pink noise CD. Pink noise can also be downloaded from the pink noise CD to an ipod. The only caution here would be that the pink noise be converted to a WAV or AIFF format.
2. RECRUITMENT: There are many more individuals who have recruitment. Recruitment is the a rapid growth of perceived loudness for sounds in the pitch region of a person who has hearing loss. This phenomenon occurs because at some decibel level, the normal hair cells adjacent to the damaged hair cells (corresponding to the frequency of a hearing loss) are "recruited." At the decibel level at which these normal hair cells "kick in," perceived loudness shoots up rapidly, causing discomfort. In other words, at one point the person cannot hear the sound because they have hearing loss (in that frequency), then when the sound reaches a certain loudness and/or frequency the person is blown away. Once they finally hear the sound, it is perceived as far too loud. Recruitment is a common phenomenon in cultures where the majority of their lives have been saturated with too much noise like our Western culture. Common treatment is the same as it is for hyperacusis unless the persons hearing loss is so pronounced that listening to broadband pink noise would be of no benefit to them.
3. HYPERACUTE HEARING: Then there are individuals who are sound sensitive at birth but it is only specific to certain frequencies heard at loud levels (typically above 70 decibels). It may seem like we are splitting hairs here but remember the key words with hyperacute hearing are sound sensitive to specific frequencies heard at loud levels. These frequencies are typically labeled 'problem' frequencies. Autistic children are good examples of this. They can tolerate some sound at normal or even loud volumes but some frequencies are intolerable. Commonly autistic children, children who are marginally autistic, or non-autistic individuals who have hyperacute hearing are treated with auditory integration therapy (AIT). AIT takes regular music and filters out the problem frequencies through a special machine called an audiokinetron. Somehow this therapy seems to 'retune' their ears and normalizes their hearing tolerances. The music is listened to at decibel levels which can peak up to 90 decibels. This creates a problem for the hyperacusis patient. The therapy is too loud and only worsens the condition of the hyperacusis patient whose Loudness Discomfort Levels have been compromised. Hyperacusis and recruitment share part of a common pathway but in some ways we are very different and our retraining therapies run very much a different path.
Phonophobia often develops with an individual who has a significant collapsed tolerance to sound. They not only fear the sound of the environment they are experiencing in real time (right now) they worry about the sound that future events of the day or in the near future will produce. Phonophobia can take over ones life and make one feel they need to isolate themselves to survive. This is a recipe for disaster. It is critical that we keep our ears active to rebuild our tolerances to sound. That is why broadband pink noise is so crucial to bringing us back to the mainstream of life.
4. MISOPHONIA: (dislike of sound) has often been thought to be hyperacusis. This is not true. Let us be clear here. A hyperacusis patient can have a strong fear of sound (phonophobia) or a specific dislike of specific soft sounds (misophonia) but neither one of these symptoms stand alone as hyperacusis.
Hyperacusis is a collapsed tolerance to normal environmental sounds. They hyperacusis patient may or may not have phonophobia and/or misophonia. If the hyperacusis patient IS also dealing with phonophonia and/or misophonia then their clinician needs to address these issues is addition to treating the patient for hyperacusis. It is also important to note that a person can have phonophobia and/or misophonia and not have hyperacusis at all. Sound confusing. Let's talk...
We will discuss forms of misophonia. They are not a separate catagory of sound sensitivity because the issues we are about to talk do not involve loud sounds. Some individuals are not sensitive to loud sounds (in other words they have normal loudness discomfort levels - LDL's) but they are unable to tolerate the sound of people eating or chewing. Oddly enough they have no problem tolerating the sound of their own eating. These individuals have a difficult time eating with their family and friends and some insist on eating all by themselves. They become irritated or enraged at meals and sometimes. This is not hyperacusis. The patients primary goal would be to neutralize or refocus the dislike they have of these specific sounds. Most of these individuals live very normal lives with the only exception of being unable to tolerate all the dynamics of other people eating. Often these individuals have been unsuccessful finding any information about this condition. To the best of our knowledge no articles have been written in any qualified medical journal and no studies or research has been done about this. Patients seeking treatment from their clinician may have to copy the information from this website to help their doctor understand what is taking place here. Treatment for these patients comes from clinicians who have a specific protocol for misophonia. Search the network message board using the word 'misophonia' to learn more about this problem and protocols suggested. Usually these individuals are sensitive to particular sounds which are not loud in volume. For example, some individuals have a hearing sensitivity to certain consonants (i.e. s, t, p, c). Once again, although this is a sound sensitivity issue, this is not hyperacusis. It is misophonia.
Misophonia is a symptom which is misunderstood. The word 'misophonia' was invented by Dr. Pawel Jastreboff to help clear some of the misunderstanding. Aside from a misophonia protocol it is not clear whether broadband pink noise helps the patient improve their dislike of sound. Some individuals with misophonia have been diagnosed with an obsessive compulsive disorder (OCD) and have sought treatment from a psychotherapist
The first is a fantastic Yahoo email list that offers advice, support and information: http://health.groups.yahoo.com/gro... />
The second is a series of free downloadable podcasts from Tara Brach. While she does not specifically address misophonia, she explores how anxiety becomes a "trance" state that requires very conscious compassionate attention.
The guided meditations and teaching talks really help me to manage this and other conditions. Since listening to them for the last two years I've had a significant improvement:
http://www.tarabrach.com/audiodharma.html
http://health.groups.yahoo.com/group/Soundsensitivity/
When I for example, go watch TV it sounds way to loud to me and it is and irritation, not a pain. When I go into a quiet room the T. goes down. So, quiet is my way of masking so to speak.
Now, I went to the Oregon State Reserch Center and after many tests was told I have reactive T. and that he, Dr Martin, said he has only seen five cases in his twenty years of being at the research center
Thank you for all the wonerful information,
Kasandra.
Today, momentary bout of vertigo waking up in the middle of the night and again this morning getting out of bed. but I had LOW T and THEN I went to a neighbors place for lunch, she talks EXTREMELY loudly and boom, a T spike.. I talked to a dear friend from LA who was worried about me and made the mistake of talking on the cell for an hour and BOOM, my T spiked to a nonhabituating level. I felt like an idiot for not using a landline. I also ate food I probably should not have eaten. I got a pitch spike earlier within FIVE minutes of eating processed ham and I havent had a pitch spike in a quite a while.
Its hard to lead an ascetic life to protect your T level.
I am curious, does anybody else get spikes in T from cell phone use?
p.s. I got an H spike, which is RARE for me, after drinking cocacola for the first time in 5 months. I won't make that mistake again, its hard to say which sucks worse, H or T but I think i have to go with the H!
Mike
I am very careful now about the noise level I expose myself to. I use earplugs in church for example. Let's keep in touch.
You are very wise to protect your hearing. I am told you have to pick your spots and I think thats true. when I tried to protect it all the time my H got VERY sensitive, to the point I could hear sound of my own breathing and the sound of birds far outside of my house. I've managed to decrease the H by exposing myself gradually to higher levels of noise but sometimes I mess up and get blasted and that sets the T back, and the ear pain back.. Its a VERY tricky condition to manage and when I suffer from someone thats being inconsiderate or just stupid its hard to keep my stress level down.
I can now go into places without my ear muffs were I used to HaVE to use them. In fact, a couple of those places actually mask my T where before I couldn't stand it. But one takes their chances. a screaming kid in a store is enough to make my ears ache. I am committed to beating this, if the medical community can't do it for me I'll do it for myself.
I am all for keeping in touch Ginny. I've been trying to keep up on here more often now that the holiday season has passed.
Mike
Thats sounds positive & gives you something to work on
I have had hyperacusis since sept.2010 & as you & many others know its makes life very difficult lets hope you get a result soon
best wishes .....dd.