Tinnitus, Deafness and Ear Problems Support Group
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
JohnK
My Summer Vacation or Paradise Lost and Found (no religious implications)
I went hunting cricket last September (2008) for fear that theyd be dying soon. They were not too hard to catch while tip-toeing wearing camouflage fatigues. What did the neighbors think of my bare foot? I'm not dismembered, only lazy. Actually I caught 11 crickets in the backyard woods and 3 in or near the garage. Unfortunately my dog ate 3 of them almost immediately so I was down to 11. My evil nephew captured, tortured, and squashed another 3. I was concerned that I might have to keep the thermostat up too high that winter. Crickets can survive at 62 degrees. I set my new cricket pets free in my netted living room. I soon added 4 caged parakeets to the 4 corners of this room. The living room decorations also included a half empty fishless fish tank. This created the perfect white water noise without the burden of feeding the fish or harming the fishes hearing.
In my paradise created, my tinnitus was an invisible trace of a sound that I could hardly perceive; the invisible sound that it really is. I couldnt have been more pleased in this environment but the family and visiting friends did not find my paradise found too pleasing. The kids found it just weird. The wife tolerated it until Christmas but found the constant and constant and constant noise too annoying. My friends and other relatives preferred to sit in the kitchen. Conversation suffered. Relationships strained.
My sanctuary had become a prison within my prison. I could come out of my prison and into the hidden prisoned world of others or hide in my living room. I could envy the rare species of a human who had no prison. I could have contempt for those who thought they had real trouble when their troubles were really trivial. I could feel better about me when passing a quadriplegic in a shopping mall. Or, I could set the crickets and the birds free and fill the fish tank with water and fish.
I think it necessary to report to the big t community, that I had one of the best summers of my adult life(2009). The crickets found holes in the netting and escaped. I gave the fish tank to my daughter who now treats it like an aquarium. Lets not discuss the parakeets but 3 of them are gone now. What I mean to say is that a summer of life and laughter is possible even in eeeeeeeeeeeee. I witnessed it. I never would have thought it possible even a year ago.
If youre new or a veteran to tinnitus, persevere and persevere and when in deep despair spend hours in the shower till your skin withers. Its worth it. You can go in and you can come out and hide there again if need be. Not to brag but my brand of eeeeeeeeee is louder than center city traffic and Atlantic crashing waves. Forgive this analogy, but Id rather pay hell forward. Ive tried to be mostly good but Ill never be nominated for sainthood. Even if this bizarre nomination was inflicted on me, Im really owed nothing. You owe me nothing but Im indebted to you. What a wonderful world. Really, (no sarcasm intended) what a challenging and wonderful world. What a privilege to press these keyboard keys no matter what. Tinnitus isnt physically killing you, dont let it kill you on any level. Summers coming againGod willing.
I went hunting cricket last September (2008) for fear that theyd be dying soon. They were not too hard to catch while tip-toeing wearing camouflage fatigues. What did the neighbors think of my bare foot? I'm not dismembered, only lazy. Actually I caught 11 crickets in the backyard woods and 3 in or near the garage. Unfortunately my dog ate 3 of them almost immediately so I was down to 11. My evil nephew captured, tortured, and squashed another 3. I was concerned that I might have to keep the thermostat up too high that winter. Crickets can survive at 62 degrees. I set my new cricket pets free in my netted living room. I soon added 4 caged parakeets to the 4 corners of this room. The living room decorations also included a half empty fishless fish tank. This created the perfect white water noise without the burden of feeding the fish or harming the fishes hearing.
In my paradise created, my tinnitus was an invisible trace of a sound that I could hardly perceive; the invisible sound that it really is. I couldnt have been more pleased in this environment but the family and visiting friends did not find my paradise found too pleasing. The kids found it just weird. The wife tolerated it until Christmas but found the constant and constant and constant noise too annoying. My friends and other relatives preferred to sit in the kitchen. Conversation suffered. Relationships strained.
My sanctuary had become a prison within my prison. I could come out of my prison and into the hidden prisoned world of others or hide in my living room. I could envy the rare species of a human who had no prison. I could have contempt for those who thought they had real trouble when their troubles were really trivial. I could feel better about me when passing a quadriplegic in a shopping mall. Or, I could set the crickets and the birds free and fill the fish tank with water and fish.
I think it necessary to report to the big t community, that I had one of the best summers of my adult life(2009). The crickets found holes in the netting and escaped. I gave the fish tank to my daughter who now treats it like an aquarium. Lets not discuss the parakeets but 3 of them are gone now. What I mean to say is that a summer of life and laughter is possible even in eeeeeeeeeeeee. I witnessed it. I never would have thought it possible even a year ago.
If youre new or a veteran to tinnitus, persevere and persevere and when in deep despair spend hours in the shower till your skin withers. Its worth it. You can go in and you can come out and hide there again if need be. Not to brag but my brand of eeeeeeeeee is louder than center city traffic and Atlantic crashing waves. Forgive this analogy, but Id rather pay hell forward. Ive tried to be mostly good but Ill never be nominated for sainthood. Even if this bizarre nomination was inflicted on me, Im really owed nothing. You owe me nothing but Im indebted to you. What a wonderful world. Really, (no sarcasm intended) what a challenging and wonderful world. What a privilege to press these keyboard keys no matter what. Tinnitus isnt physically killing you, dont let it kill you on any level. Summers coming againGod willing.
Mich
Your prison analogy is particularly resonant with me. I have been staying away from places that I love because the noise made my T worse. I am finally realising that I am locking myself away and detracting from my life not adding to it. I also get the envying of people who don't have it, the contempt for those who thought they had it bad, and had NO idea of real sufferring,,and the feeling that maybe someone had a worse condition than me so what was my problem, but not feeling any better for it.
You essay will resonate with all of us who have had it for awhile and have felt what you have and learned what you have and will give hope to those just starting their journey wkith Tinnitus. Good on you .
Thank you for posting John.
This is where having feelings of positive support has met so much. It is wonderful John to hear after all that you been put through that you are having the best 2009 summer of your life. Yet your T is top notch, you are demonstrating that you are to make life work and to boot make it even better. Congrats and these thoughts are an icon for any T sufferer.
Summer and all seasons are a joy (maybe 5 feet of snow and minus wind chills are an exception), and its always so great to hear that one is really making the best of things.
I enjoy a story with a happy ending like yours. It seems that you have an interesting take on life and that has probably helped you get where you are with your T. I'm glad you had a great summer too. I had a great summer also even with my T. My 12 yr. old daughter completely wore this old lady out over the summer but I wouldn't have changed any of it.. I'm coping better now during the day with my T. I have high pitched ringing along with pulsatile T. My nightime T is a whole other story because of my insomnia. But i'm not giving up hope.
I'm wishing for all our T stories to have happy endiongs!
Deb
"a summer of life and laughter is possible even in eeeeeeeeeeeee." -JohnK 9/17/09
Thank you, John.
Thank you so much for sharing and caring enough to do so....Thank you also for giving us all a ray of hope. In the deepest darkest hours when T is screaming it's head off I will come to my computer and read your post over and over again....it made me cry, but it made me smile....
Mandy
Thanks for telling your story so creatively.
-Mark
Pat
Jim
Perseverance in the present torment makes the past seem too easy (we know the outcome) and the morning brings perserverance again. By Wednesday the impossible day of the past Friday are minutes gone by. Too soon is the present past for the healthy and the not. Too soon will our lives be a study of an arrogant archaeologist thinking his time and conclusions are monumental. Lets not be stupid. A day lived is better than a day dead.
That was such a great story. I wonder if you could make a recording of the crickets and birds. Then you could go anywhere and get out of your pain.
I have had great depression over T. I remember when it first started I just did not function any more. I just did not care anymore. T. stopped my life for a period of time.
Then I had the chance to join a choir. I saw an ad in the paper about this wonderful choir who raised money for young singers and gave them grants to go to college. They also raise money for other wonderful causes.
I love music, so I joined. And you know, even though I have to wear anairplug in one ear because it is so loud when we sing and the instruments that are used with the choir drive me crazy. I go and sing my heart out, and I hear my T. reacting and I just do not care. The love of this choir outways my concern for the noise of my T.
That is when I decided, nothing that I love will get in my way again.
My T. is the opposite of most people, it goes up with noise and down with quiet.
I have learned you can not live in a bubble.
I could be blind or in a wheel chair, or in a much worse place, and time is to short to die over this now. I will go when it is my time, but I am going to live the best that I can for now.
This is a great group of people here, and this site is the other wonderful thing that has happened to me since I got this nighmare thing called T.
I thank you for your story,
A big giant hug to you,
Sandy