Thrombocytopenic Purpura Support Group
TTP is a rare disorder of the blood coagulation system.Thrombocytopenic purpura are purpura associated with a reduction in circulating blood platelets which can result from a variety of causes. There are two known types: Idiopathic thrombocytopenic purpura (ITP) and Thrombotic thrombocytopenic purpura (TTP or Moschcowitz disease). Give advice, share your story, and find...
I have known my diagnosis for 5weeks now.. been getting headaches since like a week b4 I went to the emergency- had all the ttp symptoms that week. anyway.. these headaches aren't letting up- I'm getting pain meds, but the point is they are staying pretty consistant like the pain levels at their best and their wost seem to be the same now as 5-6 weeks ago..Dr says its ttp. wondering if they'll ever let up i'm fine- plasma most likely will stop next week, steriods stopped last week. In remission 3weeks. Feel good; platelets are over 300,000...My point- Does anyone here with TTP get headaches?
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This isn't really bipolar related but there is never anyone on the parenting groups, this is the most active group I've been in.My 6yr old son has really bad seasonal allergies and they're in full force right now. He gets a terrible cough; he coughs all day and all night, making it hard for him to sleep, and his nose runs.I've tried every allergy medicine, OTC and RX, and none of them affect his...
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
I have ttp was diagnosed in 2005 after a serve stroke uclh(university college London hospital) in London uk are doing some resherch into headaches etc after ttp, but i think its mainly for patients who have had strokes, i am taking part and have had blood tests and done a pc test am going sat for mri scan and heart scan, hopefully me taking part will help others.
YES YES I have headaches now! the MRI showed nothing --- I never had headaches before the TTP! I am glad to hear that I am not the only one --sometimes the headaches are so bad I could go run and hide! Hopefully with time they will stop or slow down! I am thinking positive and sending everyone good thoughts of headache free days! In the spirit, Judy