Support and Chronic Pain Community Group
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cherrychanga
Yesterday was my 'changing of the Fentanyl patch' day. I put the new one on in the morning and managed to get through a busy morning of work.
Then last evening, something hit me without warning. Sudden nausea, extreme dizziness and loss of coordination. My eyes could barely focus and I was getting frightened. I felt like I could just drift off and stop breathing if I didn't make an effort. I was actually thinking that something serious was happening and someone would find my body later the next day.
I was in bed by 7:30 for fear of toppling out of my chair. Because of my fear, I tried to stay awake. I was forcing myself to be aware of every breath. It felt like breathing in would only happen if I forced myself.
Finally, after struggling to stay awake for quite a while, I felt it was safe to sleep. My muscles had been twitching and jerking so I allowed myself a very small dose of Trazadone.
I slept until 2:00 and woke up feeling rotten. The nausea kept building until I vomited a couple hours later. This part also happened last Friday evening, but without all the dizziness that I had last night. There have been times when it feels like my meds are keeping my stomach from emptying and the result is always losing whatever I have in me.
I know that Fentanyl causes drowsiness, but this isn't a new med for me. I wasn't overheated so that couldn't have been the cause. I wonderif the patch did, in fact, release a sudden larger amount than it should have.
During that period of time, my pain was actually under control! But I guess I'd prefer pain to feeling like I've overdosed. I feel terrible today. My stomach hurts and I can barely drag. I don't know what to do about this event and I'm not sure I want to put the next patch on when it's due. I'm on 50mcg. and I know I can't just stop without a plan, but I also don't need for my pain to elevate, either.
What do I do? This is scary and I'm so tired of it all.
Thanks for reading my long story.
Cherry xoxo
Then last evening, something hit me without warning. Sudden nausea, extreme dizziness and loss of coordination. My eyes could barely focus and I was getting frightened. I felt like I could just drift off and stop breathing if I didn't make an effort. I was actually thinking that something serious was happening and someone would find my body later the next day.
I was in bed by 7:30 for fear of toppling out of my chair. Because of my fear, I tried to stay awake. I was forcing myself to be aware of every breath. It felt like breathing in would only happen if I forced myself.
Finally, after struggling to stay awake for quite a while, I felt it was safe to sleep. My muscles had been twitching and jerking so I allowed myself a very small dose of Trazadone.
I slept until 2:00 and woke up feeling rotten. The nausea kept building until I vomited a couple hours later. This part also happened last Friday evening, but without all the dizziness that I had last night. There have been times when it feels like my meds are keeping my stomach from emptying and the result is always losing whatever I have in me.
I know that Fentanyl causes drowsiness, but this isn't a new med for me. I wasn't overheated so that couldn't have been the cause. I wonderif the patch did, in fact, release a sudden larger amount than it should have.
During that period of time, my pain was actually under control! But I guess I'd prefer pain to feeling like I've overdosed. I feel terrible today. My stomach hurts and I can barely drag. I don't know what to do about this event and I'm not sure I want to put the next patch on when it's due. I'm on 50mcg. and I know I can't just stop without a plan, but I also don't need for my pain to elevate, either.
What do I do? This is scary and I'm so tired of it all.
Thanks for reading my long story.
Cherry xoxo
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I know how scary it is to have a Fentanyl reaction. I hope you are feeling better and please let your Dr.know.It is something your Dr.should know about.
Take care,
MaryKathryn
Peace and love
Hippy
Peace and love
Hippy
I finally got to speak with a nurse whom I've never dealt with before. After we talked for a few minutes, she asked me what my name was!!! I'd already talked to someone before her and considering the time I spent on hold, I assumed she was getting my chart out.
She asked me if I'd be ok to just stop the Fentanyl completely. She'd already asked me a second time what the med was...grrrr. I told her that my doc said that you can't stop without tapering the dose down. Shouldn't she have known that? Anyway, she's going to speak with the doc on duty (not mine) and get back to me.
I'm still feeling sick and dizzy. If I had the time, I think I could sleep the rest of the day.
Thanks for all the responses. I really appreciate it.
Hugs...xoxo
Changing day is when this is most likely to happen.....you may need to leave some time between
The removal of one and putting on the other....
And ...you need to be certain that the site of removal doesn't still have med on it after..
It's still entering your system if it does.
I've had these fentanyl rushes from high fever over-activating them....
And they are pretty scary....
Hope ua get they lower dose n hope it works for you....
Hugs...jc
I hope they get you straightened up and this never happens again.
Hugs,
Toni
Like irocket said, if this happens again please go to ER, i had to do that with my methadone one time cause my doc increased my dose too fast, they know how to handle these situations there.
I hope you called your doc and got this sorted out.
i'm so sorry this happend, how frightning!
Let us know how your feeling
big hugs