I have scarring on my lungs but its in my liver and eyes

Hi,
I have sarcoid in my:

lungs
Pancreas
Spleen
lymph nodes in my stomach

I have Sarcoid in my lungs. Was in remission for a few years, now having a flare up and is affecting my muscles, stomach and joints in addition to my lings again. Very difficult to work ( am a nurse).

I have sarc in my lungs with scarring (right middle lobe is collapsed), lymph system, blood, joints, heart, kidneys and skin.

HI I have sarcoid in my:

Lungs,liver,spleen,nerves in the bottom of my spine,lymphnodes in both sides of my neck and my whole diaphram. I also have Arthritis and Carpel Tunnel from this diease and then there are the kidney stones.

I have it in my eyes. I had it in the lungs several years ago but it went into remission until this year when it resurfaced in my left eye.

Hello,

lorriejean started this topic back in this past August. I thought I stop by this lake side cabin here and "check in".
Well I mentioned what I have going in me as far as Sarcoidosis in my "bio" here with Daily Strength. But I'll cover that here anyway.

(1)Postive of sarcoid in my upper right area of my lungs. (2) Basically the following is all just circumstancial that sarcoid is causing the following symptoms. It hasn't been proven nor disproven of the following. (A) Arthritis - Sarcoid Arthritis?
(B) Musclar inflammatary pain - Musclar Sarcoidosis?
(C) Perpherial Neuropathy - Sarcoid Sensory Polyneuropathy? (I know I have sensory nerve damage and it's happening in both legs at the same time).
(D) Sensitive to heat (specially this), cold, sunlight, reflective light off from snow in the sunshine. This may all looped together under sensory nerve damage though.
(E) Asthma - Sarcoid Related Asthma? possibility.

Anything that sarcoid can cause is either that is not involved in me or is unknown if it is doing this.

James (Gary is not here, only in incognito!)

I have Sarcoids on the outside of my lungs,has flared up in my eyes,in skin,lympnotes,leggs,and has caused other problems as well.wich has caused me to take more meds.

IT HURTS,,,,,,,WHEN I WORK OUT IT OPENS UP MY LUNGSMM,,,,,,,LORRIEJEAN

Mine is in my lungs liver spleen and in all of my lymph nodes

I have pulmonary sarcoidosis, was dx'd in 2007 after a bad bout of coughing & chest pain, noone in my family has this so im the first..(lucky me) right now my ACE levels are low..at a 1 but its up from minus 1 6 months ago, so im being watched every 6 months thru my pulmo. Im feeling great right now but know that can change at anytime.

I have it in my liver and eyes and its like that with me no one in my family has this
take care

I have neurosarcoidosis. It is in my brain and causes my pituitary and hypothalamus glands to swell and cause terrible headaches. It also affects my lungs and causes shortness of breath. Some other symptoms are fatigue, lack of energy, and a disease called diabetes insipidus. Diabetes insipidus is a direct result of the neurosarcoidosis and is treated separately with DDAVP (desmopressin). Diabetes insipidus number one symptom is an un-quenchable thirst for ice cold liquids. There is no way to quench the thirst without the DDAVP spray.