Sarcoidosis Support Group

Sarcoidosis is an immune system disorder characterised by non-necrotising granulomas (small inflammatory nodules). Virtually any organ can be affected, however, granulomas most often appear in the lungs or the lymph nodes. Symptoms can occasionally appear suddenly but more often than not appear gradually.

1 Online
  • sonnycamehome

    A new...thing

    Hi All!I hope everyone is in good health and good spirits!I'm wondering if anyone has ever had a sarcoid growth or granuloma underneath their skin?I have a growth under my skin on the tip of my index finger. It feels round and hard, and is about the size of a metal BB for a BB gun.I'm thinking it's a sarcoid granuloma, but I'm not sure, and I'm wondering if anyone else has had any similar type...
  • canadadry

    Night sweats.

    5
    I am wondering if anyone else has this problem. I have night sweats which is starting to get a lot worse. I now wake up every early a.m. and can't go back to sleep for a while. I have Testosterone therapy for love T. I still have the night sweats.Someone once stated that night sweats can be from cardiac problems. Now I am starting to wonder.I am getting scared that this could be a cardiac...
  • JenElwa

    Newly Diagnosed and So Very Sick

    2
    Hello, what a journey I've been on!  I became very ill in early January: daily excruciating headaches, weak, faint, absolutely no energy, weight loss, temp fluctuations, chest pain, and the struggle with sleep I'd had for years turned into a constant need for rest to try and recharge. I was out of breath just getting dressed. I thought maybe I had a weird virus so I tried to baby myself to see...
  • So_Many_Ants_Outside

    Question About These...

    3
    I have had this increase over the years. It doesn't impede me, but still I wonder if it's what this forum is about. I will cough and have hardened stone-like things appear. Sometimes they are already at my throught level. Other times I must cough hardly, like I mentioned. Is this what is going on?
  • Pegs

    Pulmonary sarcoidosis/pipeline drugs

    0
    Hello Everyone, My name is Peggy Rogers. I'm new to this forum. I've recently been diagnosed with pulmonary sarcoidosis. I'm on 30mg prednisone. However I still have burning chest pain. I'm going to see a top sarcoidosis specialist in Charleston SC at the sarcoidosis center. I'm considering all my options. There are promising drugs in the pipeline by pharmaceutical industry. I found 2 companies...
  • Amydwils72

    Husband diagnosed with Sarcoidosis

    3
    My husband was diagnosed with Sarcoidosis last year and has seen a doctor but hasn't had any treatment.  He is now coughing a lot and coughing up blood and having a hard time breathing.  He is in Kansas working and I am in Florida and I am worried about him. He doesn't want to take any medications because of everything he has read on the blogs.  Any suggestions?  
  • QueSeraSera

    Sarcoidosis support

    2
    Any recent posts regarding pulmonary sarcoidosis?
  • deleted_user

    sarcoidosis and aloe vera mps supplements?

    3
    I was told by many that the herbal supplement aloe vera mps was good for inflammation and boosting your immune system. Does anyone know anything about this? Has any one taken this at all? Can you tak this medicine while being on prednisone? Or do you have to be off prednisone in order to take it safely? If any one knows anything about these questions I would love to hear your input. Thanks again.
  • I am concerned that I might have something like Wegener's Disease or GPA. I am having various problems including Chronic Kidney Disease stage 3 and fatigue which causes me to be falling asleep during the day when watching TV. I find it hard to concentrate at times. I am going to my Kidney doctor next week. I am feeling depressed about my situation.
  • deleted_user

    Marshall's Protocol

    Anyone familiar with Marshall's Protocol?
  • kselibrary76

    Can someone explain lung symptoms with sarcoidosis

    1
    I'm going to try to NOT make this a novella, but in the brief...I have a high ANA and am suspected of having CREST (scleroderma) and am being watched by a scleroderma specialist. On plaquenil for 8 months.Last year, at about this time, I had episodic symptoms of never feeling I am getting enough air. Like my lungs cannot get a satisfying breath. No blue lips or fingers unless my raynauds is...
  • jamestiotaylor

    still got it

    1
    well the persistent cough is back and it won't go away they upped my prednisone from 40 to 60 mg and im still taking omeprazole so the holidays were pretty good but if i can't get rid of this cough i must see another doctor cause wit my sarcoid i can't afford to be sick .
  • youpinek

    Sarcoidosis experience

    0
    Hi everyone!I suffered from Sarcoidosis, fortunately, I am clean now! I believe that this experience changed my life in ways I never expected before! That is why I decided to start a blog focused on that. It would mean a lot to me if you check it out, share your thoughts, experiences or even request discussion topics. Many people out there need inspiration! My goal is to help people connect and...
  • deleted_user

    Sarcoid again?

    3
    I was diagnosed with pulmonary sarcoid when I was 24 years old. I am now 42. Had no symptoms for years and now I'm seeing several things happening. Migraines, have had them for years but frequency has increased dramatically. Joint and muscle pain. My feet get really bad muscle cramps and have to be massaged to even straighten them out. Awful red bumps around a tattoo. Have heart...
  • deleted_user

    2nd doctor

    4
    ive recently kicked my first rheumy and finding another that was interested in sarcoid involvement in my ankle arthritis. what a revelation!straight away new pain management,(panadol osteo) really good!also tramadol.also recommended big dose of glucosamine sulfate(1500 mg)daily for joint repair.new mri done, now off to see another doc regarding a injection ofYTTRIUM which will fight the...