I'm a recently diagnosed RMSFer. I found out... thursday. And I'm on week two or three of being sick. I'm a little scared cause my headache is really bad (like, on par with day three of appendicitis), and keeps getting worse.

Your not alone Rbear66. I got RMSF about 2 yrs ago. I was terrified when I was first diagnosed because I didn't understand what it was. All I knew was about a month before hand one of my mom's friends passed away from it (needless to say, I cried a lot that night). And because I live in Indiana I had multiple doctors insists that my family doc was wrong in diagnosing me with RMSF. Luckily I was diagnosed before I got really sick and I'm here now (not completely healthy) but I'm here :). I'm here for both you and Sakura and will pray for you both. You both are more than welcome to send me a message if you ever want/need to talk :)

Hey I just got diagnosed...Been sick very many yrs w/fibro...What do I expect now.They sd about a yr of antibiotics...

just diagnosed 4-9-10 and it's a miracle i'm alive. it appears i contracted this late fall of 2006!! hospital discharged me w/ Cipro script cause even though ER Dr. knew i had a bacterial infection the idiot house dr. discharged me cause he admitted me for FLU?? WTF?? they didn't know what was wrong (probably only reason i am alive is i insisted on anti-biotics due to ER Dr. comments (who they would never let me get back in touch with) - medicated again for dental procedures (heart murmur requiring anti-biotics) been bedridden for last 13 months. pain started to go away after only a few days of treatment (Doxy for 30 days). today is day 7 though and i feel like every cell is on fire in my body. really wish i could talk w/ somebody going/gone through this..........

oh... along the way was diagnosed w/ fibro...... bs.......

No alone at all! I was diagnosed about 7 years ago but am still dealing with the long term effects.. :( Hang in there, and if you need to talk I am here. Looks like no one has been on this site for several months.

My nurse case manager through my health insurance gave me the link to this site. She also had me check out mdjunction.com, which seems to have a bit more activity. RMSF is rare, which is probably one reason for the lack of activity. I was diagnosed in late September 2013 after being sick for almost 6 months. The doctor who finally found it claims that once I am treated with doxy for the two weeks I am considered treated and there is nothing more she can so about it. I don't believe her, and after reading stories from others with chronic RMSF I really don't believe her. I felt a bit better for a short while after the two weeks on doxy, but my pain is still there, is still making it so I can't get out of bed for days at a time, and my mood is beginning to hit the shitter again. I cannot accept that I will be in pain, have fevers, feel drained, and almost be disabled the rest of my life. I see a pain specialist, but he doesn't listen. He seems to think that is doesn't matter where the pain is coming from, the treatment will still be the same - epidural injections, facet injections, and then burning the nerves in my neck every 4 to 6 months. After reading countless stories I really feel like I need more blood work to see if the disease has moved at all with the doxy, and I feel like I need more doxy no matter how crappy it made me feel when I was taking it. I have read a lot about Lyme Literate doctors, but there seems to be a lot of politics surrounding them, to the point they won't take insurance, and they are few and far in between, and there are none that I can find in NC. This is me venting, hoping it will reach someone that can give me some kind of hope in this condition.