lori could have written for me. i'm only a few months in but my wrists and fingers and hands are usually the worst (especially the left). my hips and lower back are just about always involved. ankles, toes, and all those teensy stupid bones along the top of my feet. yesterday my right heel joined in damn it. and a couple of weeks ago my shoulders joined in (again, the left is worse).

my knees are not a constant bother, and so far my elbows seem to have been spared. my jaw comes and goes as well, and i think either it bothers my neck or something in my lower neck is joining in the fun. just about every joint snaps, crackles, and pops whenever i move.

perhaps the most frightening/upsetting/nauseating one to me is i guess my very low back, it feels almost like my butt - i guess my coccyx has a joint at the top, whatever that is called. when i move, stretch, get up, sit down, twist, turn, whatever - sometimes something down there pops in a way that radiates. it's not painful per se, but it's a very uncomfortable feeling and being that it seems to be related in some way to my spine it scares the hell out of me.

I'm with Lori also.
Hands, feet, neck & lower back (SI joint)Then it's what decides to join in on that particular day.
Much like you Steph my bum actually hurts. It will interfer with walking when it's at it's worst. If I fall a sleep sitting I'll get stuck then the knee will freeze. My family is always lecturing me about siting at night in my chair. As I'll fall a sleep & get stuck.

That's usually the first signs I'm heading towards a flare.
Who'd have thought the bum could hurt so bad.
Mines part spinal & yes it scares me. I have no clue what's going on in the neck or lower back.
Frustrating!
Sammy

I think what is most frustarting for me is that it is all a big game of "Where's the Pain Today" Whack-a-mole.

This morning it was my left elbow joint. Often it is my feet and sometimes it is my hands, During my last bad flare where it invaded the base of my thumb, I was the whiniest person in the room. I can be fairly stoic about a lot of pain, but as a piano, player, I am the world's biggest wiener about hand pain.

my most commonly achy joints are my toes ankles, all the joints in my fingers and my wrists. Those are the ones that hurt every day. The ones that hurt with a flare are my feet, hands, wrists, knees, jaw, shoulders elbows and hips.

Shoulders are the worse. When they go I can't lift my arms from my side. Then would be hips. The pain in my fingers, wrist and ankles are sporadic, they come they go. My back has been really painful and I just had x-rays that showed multi-level ddd in lumbar and thoracic spine. I guess that probably doesn't count because my pa doesn't think it's RA related.

Any joint that I dare to use just a little more than the secret RA "oh, no, you can't do that" level. Since I have had this disease for 44 years, I do know what I can and cannot do, but sometimes I just have to move the potted plant anyway (to water it), or I have do to some housecleaning. Of course, I have also learned to continuously keep changing positions, to never allow my shoulders to be pulling upward when at a keyboard (position is everything), and to not let my hips or knees be in any odd position other than straight. Using any kind of pressure (such as opening a tight jar) seems to cause the most havoc. My worst joints are always my hands and feet - not that I need those or anything! haha

Shoulders, elbows, wrists, hands, fingers, hips, back, knees, ankles, feet, toes..................

I just never know from day to day which is going to hurt or which is going to spasm, or which is going to twitch............

Right hand only, (of course I am right handed) knees and feet.
If I am flaring my spine and my Socratic nerve. I get cortisone shots, and they last for a good while.
The Socratic nerve in spine is the one that kills me. So far the cortisone shots in that area will last a year.

Linda =)

Hands, feet, right wrist and left ankle are the constant ones, but knees are the worst-when they flare I am miserable. Had my first humira injection on Tuesday and....keeping my fingers crossed (I can actually do that for the first time in months!) that it will do the trick. Weaning off of pred this week, so we'll see how it is after that.

Isn't it interesting how you don't realize how much you use something until you can't use it without wanting to scream?

My hands are a constant source of pain. I get sacroiliac pains that stops me cold. One shoulder is a nightmare right now, making sleep hard. Knees and hips are no fun. The worst though, when they act up, are my elbows. that takes the cake for not knowing how often you rely on them until they go south.