anacortes,
I just got over some sort of illness too. I, like you, just started Remicade. I was scheduled for my third dose Friday but had to miss. I was told that I couldn't take it again until 7 days after I completed the antibiodic. I felt like I had a fever with mine but didn't check it. It is hard because I don't know if the Remicade caused me to get sick or not. It's very frustrating. I hope you get some answers soon! Hang in there!

I did not know you coulndn't take it if you were on meds, I am still waiting for the call from the dr, they will call me back tomororw, I don't htink I had anything bacterial but they did the meds as a percaution so we will see. I have a very snuffy nose right now but that is all the chest buring went away after I got up and eat something. I had the first remicdae then had to wait 3 weeks instead of 2 and now looks like I wil have to wait 5 weeks instead of 4 and I amf flying to kansas Nov 4th so hope it works out. I can tell it has worn off. I find that after each infusion my pain in my joints is a lot worse for 3 days and then it seem sto settle down some, have you found any relief from the two treatments that you have taken> I was taking enbrle for over 8 years and I still take methotreate now with this, do you?
I had the first dose at 400 then cause it bothered my bladder went to 300 the next but they are going back up to 400 this next time, what dose are you taking>
Good luck
Thanks for the reply
Becky

My sister went through this same thing. Had to go off her mtx and embrel to her pneumonia cleared up. Flared bad (as if there is a good one) Her Dr. prescribed prednozone and percocet. Now she is back on her meds and doing well as ever. Wish I wuz! lol The Spooker Peace and a prayer.

Anacortes, I have replied several times to your posts. I have been on
Remicade for 2.5 years now. I have gone through most of the things you are talking about. I had a lot of URI's the first 6 to 9 mos. I was on antibiotics for each one. They took me off the MTX for the duration of the antib. then I started up again. My suggestion is, it seems you are very paranoid about the remicade. You should discuss this with your Rhumey, and figure out if something else would be better. As I have said before, I took nearly 9 months to start feeling better and to get out of the URI cycle. I have been pretty good for the last year and I am certainly glad I stuck with it. Like you I was very disappointed the first few months. You aren't even through the load process, either give it some time or get off and try something else. I work in a clinic, I am the collections coordinator, I see every patient that comes in, 50 plus a day, I am exposed to everything, take it easy and let the meds work. Hugs, Charlie

This message is for "CHARLIE" the rest of you I appreicate your remarks so don't take this personal!

FOr the SECOND TIME CHARLIE I am NOT paranoid about remicade, I was wondering about what other people do, my dr is gone a lot he is gone this week and my primary care dr said he wans't too sure maybe it would be helpful to see what others do. I was put on the antibiodic to make sure it did not turn into something bad.
My RHuemie also told me that if after the 3 loading phases one does not feel any relief then it is not for them and he would go to something else.
It seems anytime I ask anything on here you come back with that i have some issues with this, I DO NOT< I liked the enberl an if this is what i need I am willing to take it, I just don't have a lot of infromation and came across this site and thought it woudl be good to see what others do , but I WILL NOT POST anymore I am tired of reading that you think Ia m some idiot, anxiety driven person. I happen to be a very educating person who teaches in an elementary school. I like to k now all the stuff I can and liek I said my dr usually is not too informative, that said I will find information others ways from now on, most people on here have been very nice but you constantly reply to me with negative remarks and I am sick of it, so I will not post here again!

This is a discussion board. I am just posting what has happened to me and am trying to explain what is possible and could happen. If you don't want to hear it then don't ask for input. If you don't like the input ignore it. Don't tell me I am negative, I have just posted what has happened to me and maybe it will apply to you. If you read back your own posts you have posted nothing but negative statements about Remicade. All I have done is try and give you positive results about the drug. If you don't want them then don't read them. Have a nice day. Charlie

For the rest of you out there, if you don't want informed results then don't post questions. If you don't like the answers then ignore them. I am sick of people who come back and take it out on the person who answers their post. If you don't like the answer, then move on. This person has posted repeatedly about Remicade. I have been on the drug for two and a half years. I'm not an expert but I have some first hand knowledge, sorry if you don't want to hear it. I could have said OMG , you have a URI, then Get the hell off the drug and run Forrest Run!! Instead I tried to give advice and have been shot down as being negative, so be it. Anacortes, I'm sure you are a nice person, but you certainly can't take advice.

anacortes,
Hey lady! I wanted to answer some of the questions you asked me. I have had relief from the Remicade after the second treatment but it takes me about 5 days before I start to feel "normal" after the infusion. I don't know...I just feel really fatigued and kind of ill. The pain in my hands and feet were almost completely gone until about 4 days before I was supposed to get my next infusion and then I got sick. I was on antibiodic (only for 2 days) because of a Dr. problem and the infusion center said I had to be 7 days without any antibiodic to get any infusion. I don't know if that's just the way they do it at my Dr office or if its protocal. The other questionn...I only take Prednisone if I absolutely have to but since the infusions havn't had to take any. I started out when I was diagnosed 16 months ago trying the MTX and all those but had too many bad side effects. Then I tried Enbrel and Humira..same thing so now just Remicade. I guess they can play with the dosage of the Remicade depending on how you do. Hope this helps and please keep posting I like hearing from you! Good luck girl!

Since Charlie seems to be posted some infromation that is not EXACTLY true, I will give one more time my view.
I have posted about 4 times, I can' t remember exactly,
1) I was not given any advice when I started and the nurse at the clinic acuatly gave me this site that is how i found it.
2) I have been on biogloics for over 10 years, I am NOT knew to this, I have had MTX for over 10 also. I was on enbrel and LOVED it I am not afraid to take drugs, quite the contrary I want to knwo all about it and when I don't get adivce from my dr again I aksed for people who have been on it, what better to know.
3) I DO know that each drug effects each person differently.
4) MY last post was wondering what other people do when they have a virus on the biogloics, could be enbrel, remicade, or humria, I just happend to say remicade since i am on that now.
5) I was not saying that I was AFRAID of it by any means, but want to be well informed
6) and last I DO NOT APPREICATE people who say they are giving there advice but then in each remark that CHARLIE has given has alsways said that I AM AFRIAD of the drug, or that I am over nervous about it.
7) I take all infromation i can get nad evaulate it for myself.
8) THere have been MANY MANY nice remarks and encouaging remarks to me, but I will say CHARLIES have not been.
9)Thank you to all of you who share your opinions and advice without making negative and judging remarks. it is GREATLY appreicated.
10( I just now have found out that my chest xray showed that I have Pnemounia, my primary care dr just called and I am on my way to get more meds. HE said it is definetly caused from teh remicade, I have never ever had any bad infection the whole time i was on enbrel so I guess that remicade for me is not the answer, but I would NEVER discouarge anyone else from taking it. Right now I am on hold for all meds mtx included they said and will reevaluate it in 2 weeks, if they say try remicade again I will .
THanks for listening!!!!!!!!!!

What information isn't true?

So sorry that you have Pneumonia but good that you checked out that chest pain. Hope you are feeling better soon.

However, I do agree with Charlie. It is a Discussion Board and obviously, I read it as a sharing of information and experience of being on Remicade for a few years . His suggestion that you were "paranoid" about it and should look for an alternative was his suggestion which I didn't read it as a personal attack.
When I post asking for information, I appreciate that people respond with advice. If you have made a decision not to post so be it but I feel you are cutting off a great means of support by doing so.

Anacortes, Do not let the doctor ignore you! Even though the Bible says "Blessed are the meek..." that does not apply to dealing with today's physicians. Read my post about the primary care doc giving me the brush off. He actually was repentent. Call every day until you get an answer, but be polite and professional.

Hi..you have posted about remicade and IC, and remicade and yeast

I had a bad rheummy, #6...who i saw for a regular rheummy visit, and i had a sinus infection. I was on augmentin.

I asked him about taking my humira/mtx..he says as long as i didn't have pnuemonia i could take it
Of course i fired him. I got pnuemonia, ended up in ICU, and in the hospital 5 days. My PCP asked for his name, and i think called him to holler at him

I too was on enbrel, till it stopped working..on biologics over 10 yrs also

You could call your infusion place and ask them. Before they give you remicade, and check your vitals.

i wonder if my rheummy was on vacation...and i had a question, i might call my infusion place. I'm on Remicade since March, so far so good. Haven't been sick yet..knock on wood

my responce is if your sick an on atibioatics sp, calling then at the infusion cener.asking for advice. my rheumie wanted me off antibiotic for 7 days. then start back up again. I stayed off mtx for good, it caused to many issues.


charlie has giving nothing buy great support to me, mix-ups are easy on these boards, cut him some slack, and just take formans that help you.

hoped this helped a little, im writing this late at night an im very tired

I'm sorry anacortes that Charlie came across so harsh n can't see why your feelings r hurt but n reading the post I saw it too. Even if u were paranoid of these drugs I wouldn't blame u. I know I'm scare of them. I start enbrel today. I took it ten years ago n no side effects. But it's such harsh drugs I couldn't get life insurance while taking it n my PCP didn't like me on it at all. He was afraid of patients getting cancer. My father was on it too for 8 years got cancer n died. I'm not saying it was meds fault. It's the killing the immune system to where it can't fight cancer cells from developing. According to my PCP back then. But my pain now has been so bad I'm willing to do again. So
yes am I scare of course. Aren't we all a little scare of these meds. I
didn't read where u seem paranoid of the med but ask if u should stop
got illness. I'm Rheumy wouldnt let me start MTX till I was over a UTI.
I'm sorry u r sick. Please get better n I hope u stay n post. Ann