Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
And yes a good idea to make tentative plans up until time to go...and a house cleaning service would be nice but unfornutately not in our budget :) (just kidding never used one but I know some people that do).Wishful thinking on my part :)
I would say not to stay out in the sun too much and wear sunscreen. Also go to a grocery store that bags your groceries...I realized yesterday that that's probably what caused my wrists to hurt...picking up the bags of groceries and putting them in the cart...then in the car and then unloading them at home:)
-If you've got pill that come blister-packed, pop them all out and put them in an old pill jar when you're having a good day, so swollen hands won't have to try and get that awful foil open.
-big pens, or pens with grips are easier to hold than little tiny ones.
-swishing malox/mylanta like mouthwash helps numb canker sores. (I seem to get canker sores for weeks these days)
Being able to apologize after i have been a real crank, because i am hurting . Easier said then done at least for me some days.
Cook something healthy in the crockpot once a week. Freeze meal size amounts in plastic containers. Then, when you come home exhausted, or stayed home that way, you can have a quick meal from the microwave. Wholesome food is important and a good soup, stew or casserole beats the heck out of a TV dinner or sandwich.
When we have help we bake a turkey, big one, especially if family is over. Again I portion and freeze meal size amounts to have later including gravy. Some days when RA is visiting and not leaving just taking bread, turkey and gravy to the microwave makes a comfort meal. Not exactly food channel material but hot and satisfying is good on those days. Don't forget to have some vegetables also!
LOL.. so far, everything I would say is already been posted.
One thing that I've learned over the years however, is to disect your day. If you've made it only a few hours before the beast hits, look at what all is left to accomplish, and weed some things out. There's bound to be a few things that can wait, and as we all know, pushing ourselves never ends well.
-Tanya
I am learning to say "no" to workplace requests for additional committees or additional responsibilities. It's not always easy - especially for an "overachiever," Type A personality.
I have a voice dictation program on my home computer - will need to practice more so it is more accurate. Good for those days when it is too difficult to type.
Biotene GEL for dry mouth (along with careful brushing and flossing, and biotene mouthwash)
Sleeping on a heating blanket (not pad, the cord on those baother me), covering up with my favorite comfortor, and directing an oscillating fan at my torso, to keep too much heat from being retained in the blanket
Braces, braces, braces, on bad days
Good shoes
Talking to the people here, who understand
Anti-depressant and anxiety meds
i total agree with all the other suggetions, especially the one about educating yourself. No one is as concerned about your condition and symptoms as you are, so you have to be your own advocate
Oh, one other thing, win the lotto so I can hire a cleaning lady!!!!!
!@#$%&*( whoever invented blister packs!
And one other suggestion, write notes to yourself, cause my memory is iffy at best :)