Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...

I signed up for an online stretching course, which sends you a new 'class' every day for ten days via email. It fit my budget, and the concept fit well with my overall crankiness about organized fitness activities. I mean, nothing makes me gag more than forced cheerfulness in a room full of people who are more physically fit than I am, which is just about everyone. And I've yet to find an actual real-time class that first my 'special needs' right now. Even a basic yoga class for damaged bodies was beyond me.
I know I'm stiff and I know that some parts of me feel very 'locked', and I figured that wasn't helping the RA issues. I know that walking everyday is one of the best things I can be doing, but I also know that walking when my feet ache is miserable, and if I'm walking with bad form and bad posture, I can be exacerbating problems as much as alleviating them. I realized that what my poor body needs most right now is to loosen up as much as possible. I also know that I can't possibly handle stretching-and-bouncing types of exercises. I needed something calm and focused and not, at this time, aerobic in nature at all.
The particular course I found (which I realize is inappropriate to name as it's a commercial enterprise) starts with toes. Just toes. Thirty minutes of massaging, flexing, stretching toes. I can't quite get in the same position as the instructor, with one ankle resting on the other knee, but I could adapt it, and I could hit 'pause' and take breaks. During the thirty minute session (which you have permanent access to, so you can repeat as needed) I learned that my toes actually hurt a lot more than I'd realized, and that the stretches felt really good. And two hours later, they still felt really good. And the next morning, I actually wanted, practically craved, doing those stretches again. I think the massage / manipulation helped with blood flow and that helped reduce inflammation a bit.
The second session is for feet, and the third for ankles. Nearly all of this could be done either in a chair or in bed, or standing behind a straight chair and using it for support. I have done these classes now a few times and while the 'toe' one was the most helpful for me of these three, they've all been beneficial. The proportion of science to woo is pretty good; there's emphasis on balancing extension and flexion, and the instructor frequently cautions against doing anything to the point of intense pain. The accompanying background info they send for each session talks about the importance of toes, ankles and feet for overall balance, and one of my fears is that of falling as i get older and achier, so that struck a chord with me.
There are seven other sessions: knees, hips, mid-lower back, upper back and shoulders, neck, jaw, and wrists. I expect to have extreme difficulty with some of these, especially hips - but, I think that spending a week or so intermittently doing the ones that precede it will give me a better foundation for doing so. You know, as opposed to going to a real-time class where you do everything all at once. I just can't handle that right now.
I realize this isn't for everyone, but I think it's workable for many of us. You know your own body; you know when to back off or adapt a suggested stretch. We all focus on our hurt parts, but sometimes forget to keep the rest of us as functional as possible, and stretching needs to happen before you can think about strength training or aerobic improvement. I am not promoting the particular course I found, nor am I connected to it in anyway other than being a customer. But I would like to encourage all of my fellow warriors to consider looking into ways to learn more about stretching our aching bodies.
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I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
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I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
I feel like a one woman freak show so I end up doing nothing.
What I'm realizing is that I'm so focused on the hurt parts, and understandably so, that I'm not doing regular, gentle maintenance with the not-hurt parts, and that will bite me in the.....well, it will bite me in the not-hurt parts eventually, you know? The things I've been trying to do to stay in shape or improve my fitness may have been overreaches. I can't strengthen anything that won't bend, and as long as I don't have full range of motion somewhere, that's impacting how I move and even how I sleep, and making things even stiffer. I mean, I could certainly use some more core strength, it would help with my balance. But it's not like I can do even a modified sit-up with such tight hips and lower back muscles. This stretching has to come first.
And when I tried to 'just stretch' on my own, I ended up doing illogical things with no thought to sequence. This program is very thoughtful, and explains what's going on: this stretches this muscle, this next stretch balances that first one by stretching the opposing muscle, and so on. I do not have the understanding to develop a routine on my own that's balanced.
I know, from several PT sessions, that my piriformis and IT band is tight. And I had a general sense of what exercises might be helpful. But now I'm learning that without having loosened up other parts of me first, those exercises weren't doing me much good. And who wants to waste time?
I'm really going to try to focus on this for a few weeks and see what changes. I'll report back!
I have learned though that the first step is to pour a coffee and watch an entire episode, and take some notes. I'm physically very dorky, and have trouble with body-awareness things in general; this predates the RA by decades. I'm just really, really awkward. So watching it, and sort of getting it into my brain before I try to actually do it, seems to help.
And the assessment part of it has been good, too - knowledge is never a bad thing as we figure out how to manage this disease. I hadn't realized my neck and shoulders were so tight, but I also didn't realize my hamstrings were really flexible. I do a hamstring stretch while waiting for my coffee to perk in the mornings, without even thinking about it, and also while brushing my teeth. And it apparently works. That's really motivating as I start to gently work on the stuck parts. Perhaps there's some hope.
I might get the link from you. I was thinking of a personal trainer, if I could find someone who understood what 23 years of damage can do to you!
This sounds like a good compromise!
This will not work for everyone, but it has been a gamechanger for me. The farm schedule (Ha! Schedule! As if plants and animals read a schedule!) means that regular classes or gym time is hard for me. I don't have a lot of money. I don't always understand directions about physical movement, if that makes sense - my body-brain connection just doesn't work the way it does for more athletic people. This has allowed me to totally go at my own pace, on my own schedule, in my own hideous sweatpants. And I really do feel that the physical work I've been doing on the farm, while in one sense great for me, had tightened up a lot of muscles to the point that I needed a reset.
So, I hope this is helpful for someone else.