Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...

I feel like a one woman freak show so I end up doing nothing.
What I'm realizing is that I'm so focused on the hurt parts, and understandably so, that I'm not doing regular, gentle maintenance with the not-hurt parts, and that will bite me in the.....well, it will bite me in the not-hurt parts eventually, you know? The things I've been trying to do to stay in shape or improve my fitness may have been overreaches. I can't strengthen anything that won't bend, and as long as I don't have full range of motion somewhere, that's impacting how I move and even how I sleep, and making things even stiffer. I mean, I could certainly use some more core strength, it would help with my balance. But it's not like I can do even a modified sit-up with such tight hips and lower back muscles. This stretching has to come first.
And when I tried to 'just stretch' on my own, I ended up doing illogical things with no thought to sequence. This program is very thoughtful, and explains what's going on: this stretches this muscle, this next stretch balances that first one by stretching the opposing muscle, and so on. I do not have the understanding to develop a routine on my own that's balanced.
I know, from several PT sessions, that my piriformis and IT band is tight. And I had a general sense of what exercises might be helpful. But now I'm learning that without having loosened up other parts of me first, those exercises weren't doing me much good. And who wants to waste time?
I'm really going to try to focus on this for a few weeks and see what changes. I'll report back!
I have learned though that the first step is to pour a coffee and watch an entire episode, and take some notes. I'm physically very dorky, and have trouble with body-awareness things in general; this predates the RA by decades. I'm just really, really awkward. So watching it, and sort of getting it into my brain before I try to actually do it, seems to help.
And the assessment part of it has been good, too - knowledge is never a bad thing as we figure out how to manage this disease. I hadn't realized my neck and shoulders were so tight, but I also didn't realize my hamstrings were really flexible. I do a hamstring stretch while waiting for my coffee to perk in the mornings, without even thinking about it, and also while brushing my teeth. And it apparently works. That's really motivating as I start to gently work on the stuck parts. Perhaps there's some hope.
I might get the link from you. I was thinking of a personal trainer, if I could find someone who understood what 23 years of damage can do to you!
This sounds like a good compromise!
This will not work for everyone, but it has been a gamechanger for me. The farm schedule (Ha! Schedule! As if plants and animals read a schedule!) means that regular classes or gym time is hard for me. I don't have a lot of money. I don't always understand directions about physical movement, if that makes sense - my body-brain connection just doesn't work the way it does for more athletic people. This has allowed me to totally go at my own pace, on my own schedule, in my own hideous sweatpants. And I really do feel that the physical work I've been doing on the farm, while in one sense great for me, had tightened up a lot of muscles to the point that I needed a reset.
So, I hope this is helpful for someone else.