Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
take the lowest dose of plaquinel (poorly spelled), nothing else for RA. I do take regular vitamins (shaklee), baby aspr, flax seed oil.
no deformities as of yet
no other associated illness as far as i know
this morning when I awoke my shoulders were stiff and getting sore so I immediately started windmilling my arms and stretching and moving arms. this began breaking up the calcium in the joints and I'm fine now....sounded like i was stomping bubble wrap...attribute it to the cold that finally arrived in SE Alabama
truly believe eliminating night shades are keeping flare ups away. Oh, lastly, when diagnosed i was in the middle of a huge flare (only one thus far) couldn't even dress without help, swollen from fingers upp both arms through shoulders and across the upper back. as soon as i left Dr's office called my Mom. She said, "MOVE". My reply was that geography had nothing to do with it..."No", she sad, "move the joints, limbs, fingers. You must break that stuff up or it'll become permanent". She was right.
At 57 years old
Currently on prednisone 5 mg and Xeljanz tablet
Hands just alittle deformity
Inflammation ate the connective tissue in my hands- I had surgery in January 2012 (before diagnosis) to reconnect my extensor tendons to my knuckles. From what I am told, this is a very, very unusual injury, usually affecting one knuckle. It happened to all my knuckles on both hands.
Secondary illnesses: fibromyalgia. Adrenal insufficiency from trying to wean off prednisone. I've been on it since diagnosis in may 2012, and now I'm seeing an endocrinologist to help me wean off safely. Over the summer I had an adrenal crisis which put me in the ER and left me basically useless for a good six weeks. Be careful with the steroids!!!
Medications: I could not tolerate MTX. I failed enbrel and Actemra, and am currently on rituxin infusions. Also prednisone, Vicodin and gabapentin. And of course multi vitamin, extra vitamin d, b complex and calcium. When I can stomach them, fish oil capsules.
I should add that I have been on medical disability from work since this time last year. The insurance company just made me apply for SSDI.
My right hand looks funny- scarred from surgery, with lumps that are non- dissolvable stitches holding my tendons in place. My big toe joints are starting to look different too. Other than that, no deformities yet.
I've developed Spinal stenosis permanent nerve damage from waist down on left side, drop foot, genu valgum, 6 fingers are bent out & crook and all the other common hand buckling. I have Secondary Sjougren's. The cataracts & hearing loss is attributed to the prednisone.
My right ankle collapsed 4 weeks ago and in inoperable. I'm being fitted for a brace. I can barely walk across the room.
I've had carpal tunnel due to RA for 10 years.
And, I'm being treated for depression for the past 10 years. (that's common with RA).
Also, 2 knee replacements and 2 surgeries to rebuild lower back.
I've taken ASA, Aleve, Ultram, Vioxx, Tylenol 3, Oxycodeine, & Oxycotin. Please excuse misspellings, It's
been a long day!)
It's been over 2 yrs diagnosed. Although I'm sure it's more like 4-5.
Treated for spinal problems when swelling , joints freezing up, neuropathy etc all started. Finally my doctor noticed the swelling was worse & sent me to Rheumy.
The Rhuemotogist said had to have at least 1-2 yrs before diagnosed.
That was in my mid 40s
Fingers & big toes reshaping
Nodule on elbow
Lose of ROM in shoulder
Spinal ( cervical & SI joint)
Sjogren's
Myofascial damage
Recent vision changes
Enbrel, Motrin 800mg, Rhizotomy for cervical spine
Nerve blocks
Prednisone when needed
Muscle relaxer
Vit D
Calcium
Magnesium
Multi ( when I remember)
Chronic Sinus & respiratory infections since starting Enbrel
Could not tolerate MTX
Hope I covered everything
Currently entered Twilight zone better known as brain fog.
Take care every one.
Sammy
My current treatment includes Actemra infusions, Plaquenil, Arava, and 2.5 mg of prednisone (off that entirely soon, hopefully). I take a long- acting form of morphine called Avinza, and a short acting pain medicine called Nucynta. Actemra is currently working wonderfully for me! I have tried Humira, Enbrel, Orencia, and Remicade, and I was about ready to give up on the biologics, but so far this has been wonderful (4 infusions so far).
I don't think I developed anything because of RA but I do have a list of illnesses:
Fribromyalgia - Lyrica
Gout - Allopurinal
Osteo-Arthritis - Voltaren tablets
Sjogren's Syndrome - Pillocarpine
Asthma - Singulair, Flovent (steroid), Provental inhalor, prednisone only in emergency
Alergies (exacerbate Asthma) Zyrtec, Nasonex nasal spray
Irritable bowel syndrome
Hiatal Hernia - Prilosec
RA - Actemra, Arava, Calcium, Vitamin D, Norco as needed
Anemia - Folic acid,
Vitamin B12
High Blood pressure - Metoprolol ER
High cholesterol, Lipitor
Neuropathy in feet
fatty liver
I have nodules in my elbows and both small finger knuckles and my fingers are showing mild deformities
I think that's everything (lol)