Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
It's hard to say seeing as your pain and involved joints are minor at the time. It may be a while before your docs can say definitively yes or no on ra and or meds.
I won't bore everyone here again with my entire case history. Let's just say that I've had RA for twelve years now. Classified as extremely severe during flares. Yet I've never gone on MTX or biologics. I've had success with Minocin, prednisone in the past. For the last 1.5 years I've enjoyed full pain free remission through diet alone. Turns out that I have multiple food allergies and my body's allergic response is rheumatism inflammation. So far only the slightest RA erosion of joints is visible on imaging.
My mother has extremely aggressive RA. Hands twisted in first four years. Then she tried Minocin. Was in pain free remission for the next 20 years on it. Then she went through breast cancer treatment. RA has disappeared completely since the chemo a few years ago.
I could give a few more case histories to show that life long meds are not always necessary. But not every case will be so lucky. The primary goal for all RA treatments are to manage inflammation and pain. Some will advertise that they MAY slow progression - but there is no guarantee and most are only effective for 39% of patients.
Chances are if your current treatment is working to reduce your symptoms to what's tolerable for you - that a good rheumy will not pressure you to go aggressive. Mine is thrilled to only see me for annual checkups and blood work. I'm one of his greatest success stories. And mom hasn't seen a rheumy in over a decade. She doesn't need one.
Based on that my doctor wants to put my on plaquenil daily. I'm wondering if that is drastic or the normal protocol?
Stress sends my joints into a swelling frenzy! This summer, I will begin cutting back on my mtx with a goal of perhaps using much less or zero. So, talk to your doc about joint damage because that is irreversible.
Each person is very unique in how RA works in them, so there's no clear answer about how long or how many medications you will have to take in the future. There are lots of reasons to decide to take or not take medications that are available. It's important to find a doctor that you feel comfortable with and that listens to your input so you can make decisions together. If you need support or have other questions, we're always here!