Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I was diagnosed with RA Feb 2014. Tried methotrexate had to stop after 6 weeks due to liver not tolerating it. Also had kidney stones and could not take anything due to kidney procedures and infections. The past year and a half have been taking arava, 5 mg prednisone, and plaquinil. Inflammation levels still too high I believe in the 30's. Pain and stiffness and tired a lot. Rheumatologist wants to start enbrel and just the thought sends me into a panic. The sing song commercials that describe all the terrible side effects don't help. Please any experience with this drug or advice would be so welcomed! Hate RA and wish it would go away but know that's not realistic! Thank you for listening.
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I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
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I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
You need to give the warnings just cursory notice. When clinical trials are done they must report any little patient-reported condition. So if someone comes in with an ear ache, it'll likely go on the warning label. Or PMS.... In short, you just need to look at the big picture. Do you have ANY idea how many patients Enbrel has helped????? IT FAR OUTWEIGHS THOSE WHO HAD PROBLEMS WITH THE DRUGS.
So the choice is yours: live in fear of the drug.....or give it a chance, with the likelihood that it WILL work without any problems.
Remember, the vast majority of people who come to these forums are those having issues.....the ones who are successfully maintained on biologics are out enjoying life. You could be one of them.
When you have a disease that not only causes pain, but is PROGRESSIVE and can be permanently disfiguring and crippling, a priority is stopping the progression to the best of your ability. that is the goal of treating RA, since there is no cure.
Enbrel is among the best options we have. Any of the biologics are. When they work, they work spectacularly! I had about 2 yrs remission on Enbrel and also on Humira. I am now in the EIGHTH year of remission on Orenica!! That means 8 years pain-free - able to live my life as if I have no RA! More importantly, it put the brake son the destruction that had happened to my bod because I was diagnosed long ago when there were no biologics or anything to stop the damage and ravage this disease can cause. Loom at my avatar! That is MY REAL HAND! Both hands look like that! I am DEFORMED as a result of years of undertreated and poorly treated RA. Biologics are a BLESSING and worth any side-effect you can tolerate, IMO.
We each must make our own choices in the end. But know the risks you are taking if you don't treat this disease properly and weight that against the POSSIBLE side effects. It's not just joint damage. RA causes major organ issues. I had a pleural effusion with a partially collapsed lung that was filled with RA fluid and took a week to drain! RA can also affect your heart and untreated reduces your lifespan.
Self-injections and POSSIBLE side effects are scary, but not when you understand the risks of not.
I also never imagined being 73. But I will be in days!!!
Will your doctor's office have you come in so that they can show you how to administer the shot? It's so easy. Piece of cake.
I started Humira ten years ago. Was diagnosed in 1992. Biologics gave me my life back. I can't say enough good things about biologics and MTX.
You will be glad you took this step forward in the treatment of your disease. And yes, they should show you how to give yourself the injection. And if they do not, just make them stop and show you. You are the patient they need to help you and make you happy!
Hope you remember this experience so that if you ever have to take another drug you won't get anxious about it.