Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
The Dr did an MRI to see what was what. I had some nerve ablations that helped some) for my stenosis).
I was initially prescribed tramadol for the , but it really was no help. Then we tried a muscle relaxant and that seemed to help the best.
Now I get the muscle relaxant prescription from my rheumy. I only take it when I really need it and only at night as it does make me a bit loopy!
The downside is that now I feel like some of my doctors are suspicious of me. Never mind that I did NOT seek out pain management and I turned down opiates. I was referred by my rheumatologist to my orthopedist who referred me to pain management for my back. Damned if you do, damned if you don't. But having the right NSAID and muscle relaxer has made a huge difference in my quality of life, especially since I'm between rheumatologists and not receiving any other treatment right now.
My spines a mess so for me they have been & are my saving grace.
They do several procedures a year to keep this messed up body going. Without it I would have no qaulity. He does treat a lot of RA & other CP induced conditions. He is the only doc outside of the Rheumotogist that knows anything about Sjogrens.
There's a lot of negativity on PMs but they exist for a reason. They have that additional training & understanding on the body & chronic pain.
Like any other doctor it's weeding through the bad ones.
I've built a solid relationship over the years with mine. He knows I'll withstand a lot of pain without complaint. If I do have a problem he takes me very serious. No pushing it aside.
There are treatments outside of pills we may not be aware of.
It's finding that doctor whom we can place our trust in that will take our concerns seriously.
With all the changes in medical patients are cheated enough.
Also experianced the same as Etain. With me it was 3 doctors recommending PM. Times have changed & judgements are clouded.
To believe no suffering exists by any doctor is ignorance. If a patient is suffering then they deserve the proper care.....pretty cut & dry.
You know a consult wouldn't hurt. I guess it's asking yourself what you have to loose.
Wishing you the best.
Sammy
Here's the deal: you need DMARDS to control RA. A pain management doctor isn't going to prescribe them.
You should address with the rheumatologist what it is that you find lacking and see if you can't come to a better understanding.
What is the problem with the rheumatology group you are seeing? How long have you been seeing them? What have they done for you so far? If you are in a great deal of pain, tell them. They can prescribed pain medication or prednisone until something better - such as methotrexate or a biologic (Humira, Enbrel, Orencia, Remicade, Zeljanz, Simponi, etc.) kick is and takes effect. Most of these drugs take about 6 weeks to take effect. But they can give you something in the meantime.
Are you kidding me? Are you sure it's just that they don't have an opening until then? Can you get on a waiting list?
I've never heard of not being allowed to come in before your next appointment. If that's really so, I'd fire that practice and find a new rheumatologist, even if it means you have to drive a couple hours.
In my particular area, pain management is solely: physical therapy prescriptions, cortisone injections, guided deep needle injections of steroids under fluorscope, period.
I have used two pain management clinics associated with my care and the first one had poster sized (huge) warnings in the waiting room about narcotic addictions and that narcotics would NOT be dispensed. if you want to become an immediate and permanent addict of steroid injections (they don't even count how many they do in my body per year or how much) then THAT is no problem....
my pain management clinic does NOT dispense any meds.
any request for meds is kicked back to the rheumatologist.
they perform: needle sticks and write physical therapy scripts. I have a new PT script. Now I am in the heated hospital pool with the PT.
My rheumatologist dispenses: all nsaids, some muscle relaxants and gabapentin (neurontin) in a baby dose. neurontin does not work for me. and emergency prednisone tapers which I tend to turn down since I personally have to take too much pred for pneumonias. I will not use it as every day treatment.
We have a chronic disease til death so i guess I am OK with my rheumatologist's decisions. I really like her standard of care otherwise and do not want to leave the practice just because she does not dispense narcotics.
It makes emergency pain medication troublesome for me. I try to stay ahead of the pain, when it is awful, with the combo of nsaid and muscle relaxant.
I stay on my mtx and biologic crap also. I find I have to work harder at finding a med mix that works if I don't have access to pain killers.
I think my rheumatology office takes care of me they just have their own standard of care which is no narcotic dispensing.
i HAVE had narcotics for my neck fusion and my wrist tendon surgery. those were dispensed for a 2 week duration each. the surgeons were reasonable thank goddess.
depotblue
All that being said, I would give the pain clinic an 8 simply because it's not perfect but it sure is better than nothing. I don't have problems with tramadol except now it doesn't seem to be working. I don't think I've developed a tolerance, I think my pain is getting worse. It used to help but now it takes the edge off and when I add the tylenol, that works for me. I cannot take ibuprofen because I have an IBD. I also have diabetes. I know it's all related but now I think it stems from RA. Hope that helps!
Oh yeah, when I get an IBD flare, my GI prescribes prednisone. I was on top of the world on prednisone. But it's dangerous to take that long term, of course!