Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
So , I have had 2 months , give or take of Orencia samples by my Ra doc. Did not notice any major changes but there was one week when he gave me the new instaclick jet needles* that I messed up my weekly injection and it did not go in.
* I hate those instaclick ones.
they told me to wait till the next week to try again. Then , I ran out of samples ; my doctor was too forgetful to call in my Rx for it.............then I made it happen but end result is my insurance denied the Rx for it
So I have not been on it long enough says Dr. , to know but he gave me more samples, and sent another Rx to pharmacy for it.
I am not up to explaining all my particular things about my other non RA meds and other health issues ; but to say I am not able to take many of the typical things like MTX or Humira etc.
wondering about anyone else here , on Orencia , and how it worked for them ; as well as problems or perks..or insurance issues.
thanks.
i have not been on the board for so long, since they started this new one...it is hard for me to navigate on here, like even to find this place where I can post......is really difficult.
and instead of the menu or table of all the questions lined up for a specific support group , where it was easy to see what Questions or Discussions were posted; instead , now only one at at time , can be seen in my browser window (without strolling strolling etc)
I don't get why they chose to change it up so much.
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I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
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I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
if you have group health insurance orencia has a co pay program - their marketing reps are on standby to offer this give away as it promulgates the $1000 stick - they are happy to pick up most of the co pay for some folks on the co pay program (has to be commerical group health insurance) call 1-800 orencia line
oh you got denied - missed that - can you appeal?
sent the same script in even though it denied? for what reason? the usual first anti tnf that most group health insurance companies cover is either enbrel or humira (but it looks like you can not take humira - did you try enbrel yet?)
can you call the customer service end of your prescription drug company or health insurer and ask for low down on denial?
this disease requires a lot of hanging on the phone with insurance company customer service areas, the administration/nursing part of your rheum office (they should be sending through pre-authorization review FIRST to at least get a feel of what a "dummy" claim will ping back I would think before starting you on something that is going to reject by your insurer...seems like a waste of your time not to do a pre-authorization review FIRST before asking you to stick yourself with something that is going to ultimately be denied....do you have a formulary list for your prescription drug company that you can breeze through in your free time to see which biologics are covered and which are not?
what is their methodology in the office?
I apologize for the questions but with this disease you need a doctorate in administration and you have to devote hours to your own medical management. sucks I know.
depot
Try and get your doc to keep trying for approval. It is a very effective drug.
Just my opinion.
Lynne
I am embarrassed to admit but am on Medicare and my state's version of Medicaid.
I was surprised they did approve a very expensive med for my other disease over a year ago.
Well ,mind you I have had 2 months of samples ; I know my doc did not want to even attempt to bother with Rx , until he knew if A- I can tolerate it ( I have many issues I said b4) and B- if it is potentially helpful.
So as I told him last week , how the ball got dropped RE: my Rx /insurance.......he asked me questions, Did I notice anything in the way of benefits in the 2 months. I told him I was not sure but it seemed like I sort of could function a bit better.
when I said that , he pointed at me, like "Bingo, that is what needed to hear" and started typing the Rx again.
I did have the first month with the other type of needle, by the way.......which forgot the name of the type, I was not in love with doing that , but it hurt me less than the instaclick and easier for me to hold.
the instaclick jet , when I do it righ,t , leaves a mark and pain for couple hours on the injection site.
i have very delicate, aging skin. Also I think maybe I am holding my skin wrong....trying to pinch too much of it with my left hand maybe. B/c when I put the injection in, the pinched skin sort of deflates around the tip of needle thing?
My rheumatologist put me back on mthx, and then I started to feel much better. I have cut my prednisone down to 1/2 mg, and I will be off completely in a few days. I started realizing when my hands were working properly and no pain, it was time to get off prednisone. My rheumatologist did tell me to wean. I had been on prednisone for 2 years, but so far, I am doing well, and my adrenal gland seems to be functioning.
I'm retired and the Orencia company copays during the first part of the year. The provincial drug program is based on how much you pay for drugs, with a minimum deductible, till you reach a maximum deductible, and the drugs are theoretically free. We also have a work based insurance plan, with my husband, although he is on the retirement benefits for it. Between the different plans, I have been paying $0 for the Orencia since I started. I hope you can get some help if you plan to stay on it.