Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
There are two parts to a nerve conduction exam---you may be given one or both of them. The first part is the "electric shocks". They will tape electrodes to the skin on your arms in key places, depending on which nerves they're studying. They will then touch an instrument to your skin which will administer a series of electrical shocks---these will make your hand twitch. With fancy computer equipment they'll be able to tell how well your motor nerves are working. This part of the exam is mildly to moderately painful.
The second part of the exam is called the "needle exam," and it is very painful---I'm sorry, but that's the truth. You may not need this part of the exam, and you can also refuse to have it if it's too painful for you. Basically they stick an inch long needle into your muscle and jiggle it around---this makes the muscle generate electrial impulses, and they can measure how well your nerves transmit those impulses.
I had both the electrical shock and the needle exams done on my mid-back area and in both hands. The needle exam was agony---I got through it on my back but couldn't bear it on my hands. I've known many patients who did get through it though. Whomever told you it was painless was lying through their teeth (or is just plain ignorant).
Good luck and try not to worry, just be empowered by the truth.
I am not about to have this exam (thanks God!) but having read your response, I am dying to know why these tests are conducted without any type of anesthetic. They sound like sheer torture. Also, my understanding is that MRI is good enough to determine how well your nerves work. It is used extensively with people who have Multiple Sclerosis to determine how damaged their nerves are. Why would anyone offer a patient this connectivity test if MRI could provide the same or similar information and why would any patients be willing to take it? Finally, given that RA is NOT about damage to the nerves, why would anyone suggest such a test for someone with RA?
Please let me know! Thanks. Me
Nerve conduction studies are totally different---they measure the speed at which nerves are able to transmit electrical impulses---no MRI can do that.
They can't give people anesthetic for nerve conduction exams because those are depressants, which would slow your nerve's ability to process impulses (giving a false positive result). Sometimes they'll give you a light dose of valium, but mostly they just make you suffer through---and suffer you will!
Sometimes in RA joint swelling will compress your nerves---that's why RA can cause carpal tunnel and such. A nerve study will measure how much your nerves are impaired. Some options for treatment are 1. Reduce swelling by DMARDS if at all possible to free up the nerve, or 2. Surgically release the nerve, or 3. There may be no treatment if the nerve damage is permanent.
A "positive result" means there IS nerve damage or compression. A "negative result" means all is well with your nerves.
For fascinating reading on myelin and it's wonderful properties, see here:
http://en.wikipedia.org/wiki/Myelin
Thanks for the brilliant response. I knew I could rely on you!
To paraphrase what you said, if you have RA and your doctor recommends that you do this conduction test, it will be because your doctor is considering one of the following courses of action:
1. He or she are considering starting a DMARD - but, then, starting you on a DMARD is the best course of action for RA anyway irrespective of nerve damage;
2. He or she are considering cutting your nerve through an operation - but, then, if you intend to use the organ that you are suffering pain with, cutting the nerve is not a desirable option anyway;
3. There may be no treatment for your nerve damage because it is permanent but, then, there is no point in doing the test.
Well, if these are the only three reasons for doing the test, I still don't understand why anybody would be inclined to have it...:)
It just shows you that when it comes to tests, we may need to be much more suspicious of doctors than we tend to be.
And, yes, thanks for the explanation on MS and MRI and for the reference too. Me
Thanks for the additional clarification. But, to continue the discussion, if your doctor is considering surgery on your nerves because you are suffering horrendous pain, then, I would be inclined to undergo the operation irrespective of what damage can or cannot be seen through this test. In fact, if I was suffering horrendous pain that could be cured by surgery (and didn't care about losing that nerve), I would be insisting on the surgery but still would refuse this test...:)
It's an honor for me that you agree with me on this point...:)
Yes D---we are in total agreement. :)
PS The pain experienced in this test happens to be worse for younger people---their nerves are younger and more sensitive than those who are older. Disease like diabetes and MS will damage nerves and also make them less prone to sensation. Also the skill of the tech will matter greatly.
I learnt this lesson when my grandmother was dying of cancer. She was over eighty years old and her doctors insisted that she should have a test that involved swallowing a camera-line device that was to determine whether the growth in her stomach was cancer.
She had severe stomach pain for months and it got worse over time. She already had x-rays that indicated that there was a big mass in her stomach. And, as I said, she was over eighty years old.
The doctors insisted that she had to take the test because it was the only way to determine if she had cancer.
I was a teen-ager at the time and I decided to check on this issue with some books. I found out that simply taking two x-rays, several weeks apart would determine if the tumor was growing (and, hence, was cancer) or not. There was absolutely no reason to torture my grandmother by having her undergo the invasive test that the doctors were insisting on.
I passed this information to my father and asked him to insist that she should not have the test. He refused, saying that the doctors knew best.
My grandma had the test. It was terrible for her. She had horrible pain, kept throwing up, could not swallow the device, had to try again and again and again. At the end, after hours of torture they did get the result that they wanted (she did have cancer, of course) but she was so distressed by the test that she had a heart attack that same night while still in hospital, and died from it. She never had heart problems before.
My conclusion from the story was never to trust a doctor on any test (or any procedure for this matter), unless he/she can convince you of why it is necessary and how it will affect the course of your treatment.
Also, another lesson that I learnt from my grandma's story was that psychological distress is just as bad as a physical one. Under the best of circumstances, a particularly painful experience can lead to trauma that can last for years. Under the worst of circumstances it can make you physically sick or even kill you.