Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
is that how you spell it? anyway ....does anybody get tired of people looking at you like you enjoy these problems? Im ready to crawl under a rock. most of you know my problems with the pneumonia, going to pulmonoligist, cardioligist to make sure I was able to do lung biopsy, heart cath done but it wasent blocked enough for stint. did the lung biopsy any way from a different surgery pulmonoligist., the 2 different pulmonoligists came to visit me in the hospital every day. the surgery pulmon told me" Interstitual lung disease" and the other first pulmon Dr says he wanted to send a piece of the biopsy to Baylor for second oppinion from a proffessor there who knows this disease, (Im in Houston and nobody here knows about this disease?)they say it is rare.,I have an appointment Friday for " Hopefully" the results for sure. okay ..this is where it gets crazy...my family all think that the doctors are passing me around to make money !! and think Im a hypochondriac.Im so confused and frustrated about everything.I dont know anything about this disease (which if anybody knows about this, plz share) I woke up today, with a big knot on my hand on top of purple bruises that looks like they stabbed me a million times with the I Vs.which I remember 5 or 6, includding the ones they went through because my veins move. I admit I do tell my husband alot of my ailments because Im in pain! everybody else asks so they might as well sit down for coffee and stay awhile. Ive been through alot so I guess Ive been a big baby. I know my problems are real and I just want to go back to the normal(whatever normal is)at least know my problems and deal with them.I do not enjoy all this pain, I guess what I really want is acceptance and support to make all this easier. so sorry to unload if you read this book of frustration .believe it or not, I feel better just writting the feelings I have built up.
I know what you are going through. My hubby's support was like a roller coaster. sometimes very good, but then it would bottom out. Until now. Now he is in the learning stage (really learning) because he has just been dig. with RA too. This has come on very quickly and it is hitting him very hard. We both use the same Rheumy which is very helpful. Before he was struck with this, I think he thought it was in my head sometimes. He never said it, but I felt it was there. Now he calls me from work and will say some of the exact things I used to say to him. I hate that he has to learn about it by going through it, but it is nice to be able to talk about it with him. Our daughter still thinks I may have allergies....
I am praying for you today that your appointment goes well. Blessings, Kathy