Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
i am still learning my limits. I don’t hurt while I am performing a task only afterwards. Walking around he State fair on Friday, then going to a softball tournament to watch my daughter play all day Saturday, and playing the piano at church for two straight hours, now I am having the worst Monday ever. I was wore out on Saturday but all I had to do was sit and watch my child play and made the mistake of taking my 150 lb dog to watch with me. But Sunday I did not want to get out of the bed but had obligations at church. I took a nap Sunday evening but needless to say it messed up my sleep pattern for Sunday night. I just do you juggle everything and not disappoint people and still be involved in other people’s lives especially my children. I feel like I am selfish when I say no or I can’t or can you do this I don’t feel like it. Sorry just having a blue Monday that I know I brought on myself. I just don’t know when I have done just enough like walking or playing the piano. I know movement helps but when is it too much movement? What are the warning signs for you?
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I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
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I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
When I feel tired, I stop. If something important is coming up, I build in a rest day before the event to help insure that I can make the important one. You have to decide for yourself what those things are. For me, it was my family. Other obligations had to fade away. I can do some, but not all and not every week.
Not everyone was understanding about my choices. I had to be okay with that.
You will find a balance.
Roll on.
When my knee or ankle was bad, I knew on the spot when I had to stop...but now, not.
I know with church, and playing in a worship team, we play late to practice on a week night, then very early practice (for me) on Sunday before church. It just kills me to do it. But, I play flute, (besides singing) and people seem to really appreciate it. I'm taking German right now in college for fun. I'm learning lots and I really enjoy it. But, more homework than I have ever had in any course, and I have a Master's degree, Bachelor's, teacher training, and I almost finished a French Language Proficiency Certificate, but RA stopped that, in my early years with this disease.
So, I guess trying to give up some things, without giving in? And then learning to recognize when you are too tired, or in pain to do something.
I was a super mom, plus working teaching full time. My kids were in rep hockey (3 boys) my daughter figured skated to a provincial level. I had 18-20 ice slots a week! I was playing in the church orchestra, with these huge productions that were professional and attracted 10,000 people at Christmas and Easter. Then, I was taking courses at the time to upgrade. Oh, and flute lessons, music history and harmony. Plus doing all the housework, meals and shopping.
And surprise, I got sick! I think I broke my body! There were other factors, of course, but some of us Type A's really need to learn to slow down, which is most of us, from what I have read.
So, this will be my exit. I am exhausted. LOL