Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
As far as deformity goes, I have a few fingers that are going that way. Mainly, the affected joints are just bigger than the others, but I have a couple "swan necks" on my pointer and middle fingers of my right hand.
Hope this helps!
With my sacrum, it may last for hours. My rheumy is sending me to a neurologist about this, and leg and other issues.
My point is, these most likely are nerve pains. If you have a PCP, he might be willing to give you gebapenten, which is for nerve pain (if I spelled it right). Typically, though, they will want to do a nerve conduction tet first. This is not a lot of fun, as they send shocks down your nervs and time them to see how long they take to arrive, but its not too bad and all you have to do is lay there.
It is best to have this looked at asap, but I know you may not be able to do it right now If you can't go to a Dr and the pains are short and not frequent, moneywise, you may have to wait until they get a little longer so you can go to the ER, which will see you even if you can't pay. But I don't know if they will do a NCT, they will probably just want you to see a specialists later.
It is very possible that your RA is compressing nerves. Let the people in your study know this, I would think that they may treat this, since the idea of their research is to find out how there meds are effecting you...wouldn't hurt to ask.
The problem with nerve damage is that it is often not revesible
Hope you can find out something, or a way to see somebody.
I was under the impression that once you joined a study, they took care/paid for everything relvent to your condition. Is this not so?
I know when my grandpa had bone cancer, and they could not afford his care anymore, he was enrolled in a study, and they paid for pretty much everything.
Hope you feel better.