Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Looking for advice.
I have been in pain for the last 3 months. I just recently have been able to get in to see my GP. I have done blood work and some x-rays . The blood work has come back in normal ranges. I am.not able to get in to a rheumatologist until April.
How do I stay out of pain till then? And what advice do you have for me in regard to my appointment with the rheumatologist? Things to ask for and about erc?
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I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
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I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
Start a notebook. Think of the wait until your appointment as a science experiment, and you're in the stage of gathering data. As you already know, there's many options for reducing pain - start with one, see if it works, and write down the results, and then try another Track what you eat and your alcohol consumption, because you may find some connections there. It is not the same for everyone
The wait for that appointment is frustrating (consider calling in the morning to ask if they have cancellations; if you live, as I do, in an area that gets bad winter weather, and you're not afraid to drive in it, there may be an opportunity for an earlier appointment.)
But imagine if you could go to that first appointment already knowing that ibuprofen doesn't cut it but CBD oil does, and massage helped a lot but ice packs or cold treatments didn't seem to make a difference - whatever it is that you discover about YOU. This would be good information to have at that first appointment, and it would show your rheumatologist that you're going to be a pro-active patient.
Your instinct will be to protect yourself from pain and stay as motionless as possible, but in most cases gentle movement is really helpful. You can't see the rheumatologist for awhile, but could your general practictioner prescribe some physical therapy? I always thought PT was just for range-of-motion sorts of things, but I've learned that it can be really helpful for pain management.
If, like me, you have specific joints involved that show some physical changes, keeping a weekly photo album can be helpful. I have had my rheumatologist say that my hands look better to her, but I can hand her my phone and tell her to scroll right and she can look at one picture of my fingers a week since my last visit, and see that when I say there's some bad changes that I'm right.
Taking these steps will give you some solid information, and will help you feel more in control of this. There is obviously stress involved in a diagnosis like this, and stress is not helpful when you're already dealing with inflammation in your body.
Good luck to you. This whole thing sucks, but it's manageable.
One more thing you really need to consider is your liver. The stronger meds will make your liver work very hard to handle and process them and if you consume alcohol above a very very low level you'll be stressing the liver big time. Just be aware.
As Katie said, "This whole thing sucks, but it's manageable".
It is a hard disease, but life is still worth living. After 22 years, I am still enjoying my life, even if my range of choices has somewhat collapsed.
I would ask not ask for prednisone, as according to my rheumatologist it stays I the system for 6 months to a year, even though it seems like it is not doing anything. Do, see about some NSAIDs to help? And diclofenac 10% cream. I use that daily, even on good meds.
Sometimes a viral illness can leave you with inflammatory arthritis but it will eventually disappear- it can take up to 6 weeks to improve. Do you recall if you had a viral prior to developing pain? In addition, you may want to make note of any other symptoms- eg stiffness and when it comes and how long it lasts etc.
I agree with comments from others about pain management and diet/exercise etc. I didn’t know PT could help here- that was an excellent suggestion!
Also, I’ve been using CBD oils religiously and they’ve been extremely helpful for pain management. A consideration..
Wishing you all the best. Feel better