Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I rest and do as little as possible .
Hope you get better soon!
have your medication evaluated / changed.
Do hope you will be feeling better soon.
Gentle hugs
I have an appt with my USA Dr next month - looking forward to a Dr who has been a supportive, good listener - not just looking at blood tests.
I rest, use heating pads, take hot baths, and rest some more, and even all that can be exhausting!
So, rest and recovery are great to a point, but your muscles and aerobic fitness lose a large percentage of their strength after 30 days of non-use. I push through minor to significant pain (up to about an 90 on the scale) with adjustments to my meds (10 mgs of prednisone, for example, rather than my usual daily 5 mgs) and pain meds afterwards as needed. I also have an off-label prescription for Concerta when fatigue is overwhelming. Icing and heat, especially a jacuzzi or hot bath, feels great afterwards. I work out in the afternoon and evening when I generally feel less flared. I find that any discomfort I feel from the workout is balanced out by the "exercise buzz" I get from endorphins. And if that's not enough, a nice glass of wine or two helps - you've earned it, after all!
I also have a prescription for physical therapy and consult with a sports medicine doctor. They've been a great source of support for me - when my rheumy would tell me to limit my exercise due to flares, my PT and sports medicine dr would say "push yourself to do a moderate workout, pay attention to correct form and treat the pain afterwards." This has proved to be the best advice I've gotten post-diagnosis. I now walk and hike between 1.5 and 3 miles, bike ride, lift weights and use resistance bands 5 days a week for at least 30 minutes and have done so since August. Though I may be sore after workouts, I feel my overall health has improved. I'm determined not to let RA take more of my fitness than it already has. I know some folks have had success with yoga and stretching too, and I'd like to try that at some point.
I'd say I've had RA probably for 13 years, undiagnosed until recently, and when I'd flare in years past, I could still walk or do gentle yoga, pushing through my fatigue, etc. - and I'd do what I could.
However, my current flare is severe, and overwhelmingly in my inner hip/groin area (bilateral), I cannot walk without a cane, and searing hot stabbing sensations can come unannounced, out of nowhere, making me crumple to the ground.
I can barely put one foot in front of the other without searing pain, and even when I'm "at rest" it is a constant ache (even with pain meds).
My doctor strongly advised me to not exercise. My PT agrees, and my current prescribed PT is basically for time a hot whirlpool - at least until we figure out how to get me the heck out of this flare.
Any exercise would be like trying to jog with two sprained ankles or broken feet - literally impossible.
A great quote about this hot topic is from RAwarrior.com, a wonderful, very informative site about RA:
"I learned about protecting my joints by not doing things that caused pain or stress. That sounded very important to me, so I printed off lots of pages about it. Later, when I began to hear how some RA-ers are pressured to exercise, it struck me as odd. The two ideas are in direct conflict. I cannot protect my inflamed joints from use at the same time that I am using them to exercise."
I highly recommend the full article, here is the link:
http://rawarrior.com/should-rheumatoid-arthritis-patients-exercise/
This site has TONS of great info on managing RA, and a whole slew of articles regarding exercise. I highly recommend it. : )
Good for you for actively seeking info - knowledge is power. ; )
Please don't EVER feel guilty about the exercise thing. As you probably read on the RAwarrior site, it can do far more harm than help with many cases of RA.
Best wishes for you to rapidly feel better!
The link to RA warrior that RAScarlett placed in this thread is excellent and so worth reading. Thank you RAScarlett!!