Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I haven't posted in quite some time but lately I've been feeling pretty down with my RA and I always turn to this support group for some advice/pick me ups and stories!
I've been on Xeljanz since January..this is my 6th medication. It was a miracle worker for 2 months and then poof! It stopped working. I have been struggling so hard the past 6 months trying to stay positive. My doc put me back on methotrexate but it's not helping. Only thing that keeps be stable is prednisone. I have not been able to enjoy my day to day life because of the crippling pain I'm constantly in. I've been dealing with this on again off again, unpredictable pain all throughout my 20s so far and here I am at 24 still feeling hopeless.
Anyone know of some new medicines that have been released lately? Or have any advice for how to tame some of this awful swelling/stiffness/sharp pain? I've tried oils/juices/changing my diet/supplements/exercise...but nothing is giving me relief. :(
-
I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
-
I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
There's: Remicade, Humira, Simponi, Orenica, Enbrel...
I have been on enbrel, methotrexate, humira, orencia, actemra and now
Xeljanz.
I have not heard of imuran but I've seen many people talking about it..I actually scheduled an appointment with my rheumatologist today so maybe that'll be a conversation. .
Xeljanz didn't work at all for me. As for the mthx, I have just gone back it and my doctor said 6-8 weeks for it to work, even though I was on it for 9 years before. It really is a good drug to use in combo, so I would keep with it.
As for feeling bad, I don't blame you. It is hard to cope with the pain, plus the frustration of wondering if you are ever going to find meds that work. I do some meditation on Bible Scriptures daily, it helps me focus on eternity. That might not work for you, but I would look into some kind of meditation. A pain med doctor gave me a book on dealing with chronic pain and that was a big part of it. I forget the name of the book, but I can look it up, if you want. It is non-religious.
My Rheumy is taking me back in time to try enbrel and methotrexate combo again. It worked wonders for me and put me into remission for about two years in the past..it stopped being effective because I quit the methotrexate. Gonna give it a go for a few months..and if no success, we are trying remicade infusions.