Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Can't seem to get a break and getting sooo.... discouraged.
My RA wasn't too bad, with a few minor things to deal with, until about 2 yrs. ago. That is when I had both knees replaced.
In Feb. I had torn rotator cuff repaired and Dr. cleaned out a lot of RA.
2 months ago Vectra DA test shows RA activity is still high.
Ortho surgeon says the other shoulder probably need to be done too but won't touch it until RA is under control.
Port quit working and I'm having it replaced next week. Have been off meds. for that.
Now, today, I went to the neurosurgeon and need to have a cervical fusion done next month. So, need to stay off meds. for that too. Also found out I have a lump behind my knee and need to get it checked out this wk.
I will never get my RA under control staying off my meds. I feel like my life is not mine anymore. Thought I was coping pretty well until recently. I am so tired of this vicious circle. Any suggestions on coping?
Sorry for the rant, but needed to talk to someone. If I tell others I know they just say "You need another surgery?" and look at me like I'm a hypochondriac. It's hard to have friends who understand what you are going through. I am so thankful for this site.
My RA wasn't too bad, with a few minor things to deal with, until about 2 yrs. ago. That is when I had both knees replaced.
In Feb. I had torn rotator cuff repaired and Dr. cleaned out a lot of RA.
2 months ago Vectra DA test shows RA activity is still high.
Ortho surgeon says the other shoulder probably need to be done too but won't touch it until RA is under control.
Port quit working and I'm having it replaced next week. Have been off meds. for that.
Now, today, I went to the neurosurgeon and need to have a cervical fusion done next month. So, need to stay off meds. for that too. Also found out I have a lump behind my knee and need to get it checked out this wk.
I will never get my RA under control staying off my meds. I feel like my life is not mine anymore. Thought I was coping pretty well until recently. I am so tired of this vicious circle. Any suggestions on coping?
Sorry for the rant, but needed to talk to someone. If I tell others I know they just say "You need another surgery?" and look at me like I'm a hypochondriac. It's hard to have friends who understand what you are going through. I am so thankful for this site.
Hope you have a better day.
Thank you for all the caring and helpful comments.
I'm sorry you had to find this group but glad you did. This is a really nice group of people. Everyone is very helpful and caring. Welcome.