Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I have been feeling sorry for myself these last few months. I just got remarried in June of 2017 and was doing great as far as great can be with RA on humira. Then I became allergic and everything started flaring up again. My new husband had not seen the worst of this damn illness and I never wanted him to. Most embarrasing is when we have been sitting for a while and I get up to do something and can't take off like a normal person. I know he loves me but gosh I don't want him to have to live with this:(
So I have been praying for a new attitude because this one is not working. No one likes a complainer and when you have ra there is definiately something to say each and every day. I love it when people look right through you and you can tell they just dont get it.
yes, that has been my stinky attitude as of late.
So no more,
so what if I walk like Im 80 instead of 48 when I first get up. At least I make it to my destination!
so what if I need to take a nap or two to make it through my day, at least I can!
so what if ten years down the road my mobility is uncertain, no one knows what tomorrow brings!
I am blessed to have had two loves in my life and have wonderful children!
I have a church family and wonderful friends!
God is good and I am saved!
Now I feel better...xo
-
I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
-
I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
Next, was RA and other autoimmune diseases. I tried to pretend I was fine, but it was beyond obvious how bad I was. We never talked about it, I cried alone. Not sure why, maybe that is human nature. When I had my foot reconstructed in 2009, because of RA deformities, I finally needed his help. He was fantastic! I wish I had let him know earlier.
Anyway, if you are still having issues, and he does not understand, take him to your doctors' appointments. Talk to your pastor about what is going on. And trust God and your husband to see you through.
Prayer has let me cope with RA. It has not cured me. And no, medicines work because they are the right combo of the right chemicals to attack the disease. No wishful thinking or positive thinking necessary. Most RA meds do fail after a period of time. Simponi failed after 6 months. Xeljanz never worked. Kineret never failed at all, but my DMARD did - in terms of my liver. Right now, Orencia is working great! Nothing to do with my positive thinking.
Anyway, if you want to chat about it, let me know. My perspective is distinctly Christian.