Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Thank you!
By the way, I think my aunt is about to get the same diagnosis as you for her lungs. The doctors aren't in a hurry on her though, which I thought weird. She has had RA 25yrs with very little damage.
A couple months ago, she had a CT scan of her lungs (she has horrid allergies and asthma). They found a couple nodules. She was rechecked after 3 months and now was referred to a lung specialist. That doctor has narrowed it down to either RA Lung, pre-cancerous growth, or a bacterial infection from chickens/birds. She's on an antibiotic like you took and will get retested in late July. If it's mending, then it's the bacterial infection. (she raised chickens and owned a bird which is known to cause an infection in the lung). If no improvement, she'll get a biopsy.
She's not coughing, just incidental finding from when she was coughing. She's never smoked, but grew up with a father that smoked a couple packs a day.
Thought I'd mention it all to you - and when I find out more, I'll post about it.
NCGranny listed a post just so folks could search for her skin reaction to TNF inhibitors - I think that's a great idea and will do the same from my aunt's result if it's RA related.
One thing I definitely committed to memory about biologics is that they can cause allow a fungal infection in the lungs (especially ohio valley, which we aren't in). Doctors think "bacterial infection" and treat with antbiotics - have patient come back a week later or patient ends up in ER so bad that their life can be in the balance...all because the treating doctor wasn't aware of the possibility of fungal infection. Had treatment started for fungal infection, they'd be getting better.
It sounds weird, but I know when I end up with a bad chest issue, I'm going to be sure to tell the doctor about the possibility so it's considered too.
Hopefully including infomation here will help someone else. :)
I had a classmate that had adopted a bird that ended up testing positive for Psittacosis. She had adopted him from a shelter that she volunteered at.
She did end up developing it. She had had him for 18 months before he was diagnosed. He had been pulling his feathers out, etc
Her doctor said she had probably contracted it well before he was even diagnosed.
I hope that it is an easy diagnosis and treatment plan for your aunt
http://www.cdc.gov/ncidod/dbmd/diseaseinfo/psittacosis_t.htm
I might ask my rheumy for an xray, I didn't know you could find out that way. But no biopsy, since I have heard the treatment is the same as for asthma. All that bike riding, and I am out of breath walking up stairs. Not fair! And 1 in 5? I wish they would tell us these things!