Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Lesson Learned - If you don't feel like you are truly being cared for with this awful disease, there are plenty of other rheumys out there who will give you the time you need.
i no longer go to the big boston guns. they in a word sucked, including Trentham and his 5 second review of my chart (road back minocin guy)
i hang with a local RA doc now, who had the best answer ever when I asked her why she picked this specialty (besides you will not get called on beeper, you don't operate, you are a script writer, you don't get sued)
it was
that she grew up with her grandmother who had RA who had been in wheelchair since teenage hood and it affected her decision to study medicine and pick this specialty. oh gosh a glimpse of humanity.
Ros
I feel VERY fortunate that the two docs in the office where I go are concerned with patients. I don't feel rushed, and since I have to fly 350-400 miles to see him, I ended up getting there an hour early.
I was fully prepared to hang out and amuse myself for at least an hour, but they saw me practically immediately! It gave me longer to hang out in "the big city" and have a wonderful lunch.
The other rheumy in the practice is a bug MSUS fan, so I hope that I can inquire my way into that eventually. My stated goals were to continue to be able to play (musician) and figure out what the heck is so wrong with my ankle. So we have goals, and he listens to how I feel. I figure that's a big deal in and of itself.
If you think we have it bad, my husband had cancer and we went to MD Anderson, cancer specialist hospital. It was awful, you are just a non person, every doctor was cold and so crappy. Only nurses were nice. Doctors can be cold as ice. I actually got mad at his doctor, told her she was unfeeling. She perked up a little after that, we even got a hug at the end. They just forget to put themselves in our shoes. Were scared shitless, their job is to help us. I get so irritated when helping us.....is forgotten.
I'm super sick of getting pills for everything. We are just a pill nation. 80 % of the pills my rhuemy gives me, I do not take.
Hehe sorry, topic puts such a bad taste in my mouth. Ugggg
It's all about money, not health.
Lin
I get they make $$$ but they also take oaths.
I've seen the good, bad & ugly.
Not RAs but in life.
Good doctors are hard to find. If you have one they are worth their weight in gold.
Have to say my jaw would have dropped right along with chasing those eyes across the floor.
I'd have little faith in that doctor.
Mine is so so. Good visits & some not so hot. I've been working on communication with her. I've not always taken the time to make myself clear.
Good luck, cannot stand the stress of looking for new doctors.
Sammy
What did you tell them?
if you post where you live and someoe knows of a good one ..they will recommend someone to you ..good luck
Tami
Oh, need to correct the date of appt mentioned, it's 1/9 not 1/4.
Still awaiting someone to say their RA Doc has RA.... wonder if one exists?