Rhabdomyosarcoma Support Group
Rhabdomyosarcoma is a type of cancer, specifically a sarcoma (cancer of connective tissues), in which the cancer cells are thought to arise from skeletal muscle progenitors. It can also be found attached to muscle tissue, wrapped around intestines, or anywhere, to include the neck area. It is most common in children ages one to five, and teens aged 15 to 19.
My son was diagnosed with rhabdo and the recommendation we have received is to go with the 7 drug regimen as opposed to the 3. For starters I will say that I realize that different children will react differently to these medications. But I was hoping people would share their experience - why they chose one over the other, etc. I do see that there are mini-forumsn discussing the individual drugs, so I'm going to have a look through those. Also if anyone has participated in any clinical trials that include an 8th drug, which is also something our oncologist is suggesting.
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This isn't really bipolar related but there is never anyone on the parenting groups, this is the most active group I've been in.My 6yr old son has really bad seasonal allergies and they're in full force right now. He gets a terrible cough; he coughs all day and all night, making it hard for him to sleep, and his nose runs.I've tried every allergy medicine, OTC and RX, and none of them affect his...
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
maybe you can try less drugs and see if there is a response for the drugs before adding more drugs
Good luck