Restless Legs Syndrome Support Group

Restless Legs Syndrome (RLS) may be described as uncontrollable urges to move the limbs in order to stop uncomfortable, painful or odd sensations in the body, most commonly in the legs. Often sufferers think they are the only ones to be afflicted by this peculiar condition and are relieved when they find out that many others also suffer from it.

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wolfandlamb 09/02/2009

I can remember all the way to age 5, this unconscious leg movement. I was told by my caretaker to stay still constantly.

I also get compliments on my legs and instead of its because I can't stop doing this, I just tell them I swim a lot.

I am barely addressing it because I have had other things that I had to know before I went there. So there it is. I hope to find ways to help this help me sleep.

Sleep apnea is enough but I am starting to really fell numbness so the Dr said check it out with other Dr to see if meds can work together.
Thanks for any info and start ages, I am curious if anyone else remembers similiar situations.

deleted_user 08/23/2010

Hi there! I've had strange feelings in my legs ever since i can remember! I became more conscious of it in my late teens, and once i'd done some research, knew it was RLS. What an annoying condition, Arrrrgh!

wernervdw 09/21/2010

I only learned about RLS in the past 2 - 3 years, but have had it since childhood. Only now do I realise how it affected my school and studies. I especially hard a very hard time writing examinations, having to sit still and write for 3 - 4 hours. I used to write fast and once I finished I handed my work in without checking it, because sitting still for any longer became intolerable. Now I understand why. I wonder how this has affected the studies and school of others?

deleted_user 11/23/2010

Hmm I think I've had it since I was about three. I know it was before my parents split up because I remember being in my old room there and my mom telling me to just go to sleep and stop annoying them. Haha. It still affects me now, sometimes more than others, and during the day sometimes too if I sort of day dream or whatever.

deleted_user 01/01/2011

My RLS started when I broke my back at the age of 14. There are studies out now that have tested many RLS patients during sleep studies, and it shows a "higher excitability in the spinal fluid of people with RLS". I have always felt that MY RLS starts in my back and goes to my legs and arms, so that just validates what I have been thinking for the last 40 years! :o)

deleted_user 01/01/2011

I would also like to add that many doctors are under the mistaken assumption that RLS develops late in life. Absolutely NOT true. I moderate an online support group for RLS and PLMD, plus other vsleep disorders, and the average age of the members is my age (54) or younger. That group has been going since 1998, and i have had new members tell me that doctors have told them that they are "too young" to have RLS. That is total BS.

deleted_user 01/11/2011

I was seven years old when my RLS started. My parents put me on a chaperoned flight from Chicago to Ohio to visit my grandma. About half way I started crying and the flight attendant asked what was wrong. I told her, If I dont move my legs right now I am going to die! It was my first attack of RLS and it was very real and very scary and being just 7 years old made it impossible to get an adult to believe me. Today I am 45 and have bad attacks of RLS every night. Its very real and very awful.

EPagain 01/31/2011

My aunt (maid of honor in my wedding) was in her TEENS she is now in her 50's.
My daughter really noticeably started when she was not quite TWO. Now we wonder if the kicking she did in the crib might have been RLS.

As I have said though as long as she takes her vitamins now she stops, can sleep. This good sleep is finally letting her emit growth hormone. She has grown 2 1/4 inches in less than 9 months!!

Best wishes in finding something that helps you,
EP
http://www.ramswebsite.net/Eczema___RLS.html

deleted_user 02/03/2011

My son has cramping in his legs that is relieved by movement. He is eight and has been having this cramping for the past year. Tx for RLS with herbs stopped his cramping and I hope will keep him from having worse symptoms latter in life.

deleted_user 02/03/2011

I've had it forever it seems. Even as a child I got the same thing. Quit figgiting, sit still.

deleted_user 02/08/2011

Started around the age of 20.

deleted_user 02/14/2011

I was fidigy as a child but I think that was the ADD(rx recentely The past couple of nights have been really rough on me. I get up and move every day. It hit hard. I havent slept in 2 days.I have to get up at nite and I think it keeps hubby awake. Good Lord what an we do? I take sinmet, but it's not working well enough. I hurt

deleted_user 02/18/2011

I've had it as long as I can remember but was only recently diagnosed with it. My sleep study showed it woke me up 24 times in an hour.

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