I have had it for years! I am seeing a sleep consultant and hope when I do the sleep study next Tuesday, they will see how restless I am.

Stay tuned!!

Thanks. I just was curious if anyone started when they were in elemetary years and if they remember crying in the night with painful cramps?

Also being told they were growing pains and then they didn't know what to say when I was growing.

That was like 20 years ago. Now I have a diagnosis and was trying to see if I was alone.

I had pain behind my knees as a child at bedtime, and my mother always said it was growing pains. I have only recently put the two together as being RLS. My daughter had the same thing, starting around age 6, just like me.

Um..........I'd have to say I can remember it going way back to when I was 6. It hasn't stopped since. It keeps me up at night and I cannot sit still. And it does't help that I already have Insomnia..........

I feel for all of you and your child, I don't know if my adult sons suffer this. I have very limited relationship since I have been so ill and have moved 2 counties away for my sanity. Anyway, that's another story.

And Myangle123, I have sleep apnea and am resistent to the cpap machines. I tear them off in the middle of the night or some weird thing so I can understand sleep deprivation very well. One less thing with this new med to calm the wild beast.

I hope things get better. have you tried sleep aides from Doc? I have something that helps its called Seroquel. Like I said it doesn't keep me asleep because I can't breathe but it gewts me to sleep and allows me to get back to sleep after a non breathing episode. Take Care.

Pretty early in life. Im 30 now and I remember being 6 or 7 and having terrible pains.When I was 12 I had terrible veiny legs.I cant sleep and the only thing that helped is stretching late at night.It sucks so bad. I watch commercials and when the say have mild or moderate RLS its only a few times a week.UGH I wish I didnt have constant and unbearable pain.Now Im pregnant and soon its going to be harder to stretch at night. I truly feel bad for all the cronic pain sufferers. Bless your hearts.

I remember being about 5 years old...I think that's why I assumed for such a long time that everyone else felt the same things!

I don't know if everyone does this more when they are waiting for something and they get an unconscious urge to go faster?

I have had it for as long as I can remember. Right into early childhood. My father also has it. It hasn't beena huge problem for me until recently, my sleep is affectedat the moment and I tellpeople the need to move the legs is what I think drug addiction is like. i have to whale my arms around if I can't get my legs moving,and they have to be moving in a rhythm, if the rhythm is broken I tend flale my entire body, I can feel like an electric charge radiate down my spine out into every limb.

25 ish....it is just getting worse and putting me and my family though hell. This cannot last forever! I am driven to tears regular basis because I am so tired and sleeping aids no longer work. My doctor tells me to avoid caffeine! I have tried everything and a unsympathetic doctor does not help. I have not slept in 2 days as of now due to RLS and if I take more pills, I could be ill. Ugfgggh

I am sorry for the pain of just having RLS and the emotional and physical side affects that go with it.

I am hanging in with my holistic method which has done better than any meds.

I can totally relate with the pain and frustration. And of course no sleep. So many nights stretching to get some movement and spasms in my back and cramps from waist down.

Hang in and keep trying different combos or try something like holistic. I don't recommend vitamins so much as herbs from plants not animals and make sure they are not medicinal herbs but herbs that are specifically food herbs.

Hope whatever you do you try to get as much rest as you can. Hopefully you can take naps if necessary.

Take care,

Pepe's

It started when I was around 7-8 years old. I first attributed it to an accident I had when I was 4. I broke my femur bone. But then it began to occur in both legs. I knew after that, something was wrong.

I am certain I had those "growing pains" has a child,but it was years and years before any DX came to be.

I don't remember an exact age but I was pretty young when my mom kept telling me to keep my legs still. She told me her grandmother did the same thing. maybe it's hereditary. I've suffered with this for almost 30 years and I feel pain if I stop moving my legs.

Like you, I also get compliments about how toned and nice my legs are. Probably from the constant moving.

I had terrible 'growing pains' as a child, but did outgrow them. I was just diagnosed in June with RLS at the 'young age' of 40.