Restless Legs Syndrome Support Group
Restless Legs Syndrome (RLS) may be described as uncontrollable urges to move the limbs in order to stop uncomfortable, painful or odd sensations in the body, most commonly in the legs. Often sufferers think they are the only ones to be afflicted by this peculiar condition and are relieved when they find out that many others also suffer from it.
Hi,
I have had RLS for about 8 years now. I wasn't even aware I had it, but my partner had me give my Dr a note one day, and it said, "Please help her, her leg jumps about 50-60 times a night, and I can't sleep!
So, back then..i was put on Ativan for it. Then they came out with a new drug called REQUIP., which I know you are all aware of.
I was on 1 mg per day of Requip, and it worked.
But, the past 6 months or so, I have needed more help, so she put me on 2 mg per day.
Now, that's not enough.
It used to be when I slept, but now it's during the day too, like right now!!!Driving me crazy. Mine affects my feet, and lower leg , like in the ankle area, maybe a little bit above.
SO, I had asked if we could increase the dosage, and she said no, because I have a history of congestive heart failure, and am on an anxiety pill, and hydrocodone at night, and that increasing the requip, would be too many meds that cause drowsiness. I also have COPD/Emphysema, so she is concerned too many meds.
I am going nuts!! I AM TRYING to explain to her in an email now, that I need it during the day!
I take one in the morning, and one at night. Well, I have taken more than I was supposed to, so obviously now, I will have run out of my meds before I can get a refill.
Anyone else have any self help ideas, that can calm it down? I know, walking, and putting socks on, but this is crazy!
Thanks, and look forward to meeting some new people, and hearing your experiences, and input.
Boo
I have had RLS for about 8 years now. I wasn't even aware I had it, but my partner had me give my Dr a note one day, and it said, "Please help her, her leg jumps about 50-60 times a night, and I can't sleep!
So, back then..i was put on Ativan for it. Then they came out with a new drug called REQUIP., which I know you are all aware of.
I was on 1 mg per day of Requip, and it worked.
But, the past 6 months or so, I have needed more help, so she put me on 2 mg per day.
Now, that's not enough.
It used to be when I slept, but now it's during the day too, like right now!!!Driving me crazy. Mine affects my feet, and lower leg , like in the ankle area, maybe a little bit above.
SO, I had asked if we could increase the dosage, and she said no, because I have a history of congestive heart failure, and am on an anxiety pill, and hydrocodone at night, and that increasing the requip, would be too many meds that cause drowsiness. I also have COPD/Emphysema, so she is concerned too many meds.
I am going nuts!! I AM TRYING to explain to her in an email now, that I need it during the day!
I take one in the morning, and one at night. Well, I have taken more than I was supposed to, so obviously now, I will have run out of my meds before I can get a refill.
Anyone else have any self help ideas, that can calm it down? I know, walking, and putting socks on, but this is crazy!
Thanks, and look forward to meeting some new people, and hearing your experiences, and input.
Boo
Good Luck, didn't mean to go on so long. Maybe if we all work together we can get this thing worked out.
She said she will try to give me the B12 shots, to see if that helps?
I see her today, hoping she will give me one today.
Anyone have these, and did it help?
Boo