Restless Legs Syndrome Support Group
Restless Legs Syndrome (RLS) may be described as uncontrollable urges to move the limbs in order to stop uncomfortable, painful or odd sensations in the body, most commonly in the legs. Often sufferers think they are the only ones to be afflicted by this peculiar condition and are relieved when they find out that many others also suffer from it.
Hello. This is my first time on this support group. I do not have RLS but my mother does. She has a very SEVERE case and I am trying to find things that may help her. She has tried Requip, Mirapex and Clonazepam. She has been taking drugs for RLS for many years and I don't think they alleviate her condition in ANY way whatsoever. She also has a numbing spray that she uses at night. She has to wear special socks or she can't stand the feeling of the comforter or bed sheets, or if anything touching her skin.
She describes her RLS not so much as "creepy crawly" but like her "legs and feet are on fire." She says it is not only uncomfortable, but extremely painful. I have seen her rubbing her feet non-stop in her sleep (that is if she actually can fall asleep). But usually she only sleeps a few hours a night because the pain keeps her awake.
I would like to know if there is anything that anybody uses that helps significantly. Maybe some sort of random product that the RLS community knows about? I have found some foot creams online while looking for "RLS products" but they all seem to be from untrustworthy companies. I thought about maybe purchasing a foot spa and massager or something like that. Has that helped anyone?
Any ideas for things I could get my mom to help her would be hugely appreciated. I don't want her to feel such pain anymore. I would like her to get a good nights rest for once! And the drugs just aren't doing anything for her. :(
She describes her RLS not so much as "creepy crawly" but like her "legs and feet are on fire." She says it is not only uncomfortable, but extremely painful. I have seen her rubbing her feet non-stop in her sleep (that is if she actually can fall asleep). But usually she only sleeps a few hours a night because the pain keeps her awake.
I would like to know if there is anything that anybody uses that helps significantly. Maybe some sort of random product that the RLS community knows about? I have found some foot creams online while looking for "RLS products" but they all seem to be from untrustworthy companies. I thought about maybe purchasing a foot spa and massager or something like that. Has that helped anyone?
Any ideas for things I could get my mom to help her would be hugely appreciated. I don't want her to feel such pain anymore. I would like her to get a good nights rest for once! And the drugs just aren't doing anything for her. :(
-KV
My aunt and daughter have RLS. Taking Life Extension Multivitamin without copper or iron has helped them both. BTW my aunt is in her 50's has had RLS since early teens and been on requip etc. She said she cut her dose of requip in 1/2 within the first month and is doing better than she was when she was taking the full dose. My daughter, as long as she is taking the vitamin, can sleep without pushing and is really GROWING.
Best wishes in your mother working with her doc to find something that helps her,
EP
Flexion/distraction is a widely accepted and studied/tested method of pain and symptom relief and resolution for low back syndromes. Please go to a doctor near you today. I am always available at my office (816) 356-9313. Of course, I can provide treatment over the telephone, or make diagnosis, but you tell me if I can help you.
My prayers for your pain and symptom relief and resolution,
Thomas M. Murray, D.C.
Raytown, Missouri
I dont know what mine is causing, im just 22 and im losing sleep thanks to this annoying "tingling" muscle spasm that i could cry, really!
Anyway, my doctor prescribed me Rivotril, it helps as a muscle relaxant and also for sleeping. I am already on Zoloft (i suspect the long term side effect of this is the cause of RLS). Beside Rivotril, I will massage Cold Muscle Relaxant massage gel/cream (like for athletes with muscle pain etc) you can get at any pharmacy, it soothes down at least half of the annoying bits! And also a herb called Valerian Root. They said it smells, but it works.