Renal Cell Carcinoma (Kidney Cancer) Support Group
Renal cell carcinoma, also known by a gurnistical tumor, is the most common form of kidney cancer arising from the renal tubule. It is the most common type of kidney cancer in adults. Initial therapy is with surgery. It is notoriously resistant to radiation therapy and chemotherapy, although some cases respond to immunotherapy.
My father has recently been diagnosed with Stage IV RCC with bone mets to both hips. He suffered a complete break to his left femur while in the hospital to repair the pathological fracture in his left hip. During his post op visit, his Oncologist had him meet with a renal surgeon who told him that it is left kidney is the suspected source (he also has a mass in the right kidney as well). He is undergoing genetic testing to try and taylor his treatment plan, so nothing other than palliative radiation for bone pain has been started (he discovered the hip fracture on 7/19/17, had surgery on left hip femur 8/23/17, radiation started 9/13/17). The surgeon said he could remove the part of the kidney affected or leave it alone. Having surgery could potentially excellerate the disease. He has been given a 2 yr survival if treatment is successful. Has anyone had a bad outcome from removing their kidney? Also, from time of diagnosis to treatment, how long did it take? I feel like we have waiting forever to start his treatments!
-
I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
-
Has anyone heard from Jenn, she had an adult son with aspergers, Eric, they lived a long time with her grandmother, then they moved into an apartment. She had a funny little picture if I recall of a short dark haird woman as part of her name in a red dress.There are so many people who have dropped away from this room...I wonder where they are, and miss them. Wishing that DS could become what it...
I read your post, and am taking the liberty of reaching out to you in connection with a study you may be interested in.
We would like to interview your Dad, in connection with a national study for a pharmaceutical company. The one-hour interview will take place on the telephone, in October, at his convenience. We are pleased to offer to him $150, as a thank-you for taking part in this study.
No medications or treatments will be offered--this is strictly opinion research; we just want to understand a bit about his journey, so far, diagnosing and treating Renal Cell Carcinoma.
If you think he may be interested in participating, please be kind enough to pass along my invitation, as soon as possible. I can be reached at 212.289.0087, or via email, of course, at pfcresearch@verizon.net
Thank you,
David Leonard
Director
pfc Medical Opinion Research
New York, NY