Renal Cell Carcinoma (Kidney Cancer) Support Group

Renal cell carcinoma, also known by a gurnistical tumor, is the most common form of kidney cancer arising from the renal tubule. It is the most common type of kidney cancer in adults. Initial therapy is with surgery. It is notoriously resistant to radiation therapy and chemotherapy, although some cases respond to immunotherapy.

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/ Renal Cell Carcinoma (Kidney Cancer) Support Group

Newly diagnosed with Stage 1 RCC

JerseyGirl5
JerseyGirl5

Hello, In January 2017 I "accidentally" found a 1.5 cm enhancing leasion on my left kidney through a CT scan I had for another issue. I had a partial nephrectomy on my left kidney to remove it 10 days ago.  This is all new to me but I feel pretty good and optimistic.  They told me that there is only a 5%-10% chance that it will come back.  It is still a little scary though.  Any advice to help me out?  I know I need to lose some weight and get more active.  But after the past few months of worrying, I feel I have a new lease on life.  Thanks in advance.

mlr0853
mlr0853
Hi, I had a left nephrectomy back in 2012, 3 tumors. I too feel like I have a new lease on life! If you don't have a 'nephrologist dc' I'd find one... there is A Lot I have to do to keep my remaining kidney well, I'm at stage 3 kidney disease. So check where you had your surgery to see if they have a kidney/cancer support group....this would probably be your best bet. This room is very slow, I check in every once in a while, you can message me if you get no response to a post. Best of Luck! ml
GrammieX2
GrammieX2
I had my right kidney removed 5 yrs ago with simular tumor size. It was in a bad spot to do a partial. I'd just like you to know that you will go through stages.
Thinking and worrying often, then less and less. Until one day, after years of clean reports, it's not on your mind at all. I haven't been on here in a long time. Looks like conversation is slow. Message me if you need something. Glad you have good spirits! :)
Elle2017
Elle2017
Hi there, I'm new to the site... my story sounds similar to yours. I had a CT scan done for an unrelated issue and that's when they found the tumor about 1.5cm big on my right kidney. I went to a couple of specialists and both recommended getting the tumor removed given that it wasn't there less than a year ago and that it fas the MRI report said) was "suspicious for neoplasm". I had a robotic partial nephrectomy done about 2 weeks ago and my doctor got the pathology report back. It was indeed RCC.

I am still waiting for the 1 month follow up to discuss the results in detail and what the next steps will be.

What has yours been like?
JerseyGirl5
JerseyGirl5
Sorry I haven’t been on here for a long time. I hope you are doing well. I had a 6 month CT scan and all is clear. That was a relief. I still worry almost daily that it will come back BUT I feel a little better 9 months out.
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