Reflex Sympathetic Dystrophy Support Group
Reflex sympathetic dystrophy syndrome (RSDS), also known as complex regional pain syndrome, is a chronic condition characterized by severe pain following injury to bone and soft tissue. The most common symptom is burning pain. The patient may also experience muscle spasms, local swelling, increased sweating, softening of bones, joint tenderness or stiffness, restricted or...
Being in pain is bad enough- I've read a lot of the discussions here and know that I am in the right place for support. I'm not online very often and not on Facebook at all, and, so far, this is the only "real" discussion I've found online.
I hate when the pain gets this bad- I have a hard enough time getting by during the day (my husband is a tremendous help, though), and I hate that, since i've been on the meds, I can't seem to "find my words" and I can only do ONE THING AT A TIME, without interruption, or I will "lose my place or thoughts"! It's crazy! Long story short.......I once was smart and now I feel sooooo stupid!
It frustrates me....I get snippy, and don't realize that I am snippy, which is causing some trouble between my husband and I. He has been great through all of this, and thinks of MY wellbeing first and foremost....now I find that I can't even have a full conversation with him anymore! I lose my concentration and my thoughts, I get frustrated, so, I just "shut up" anymore. I worry that this will be my life (on meds for the pain that make me fuzzy and nowhere near myself) and it will push him away.
I know that stress is a trigger for some of the pain, as well, but, how do you get rid of the stress when you're stressing over the pain all the time?
I'm already on antidepressants (to work with the Lyrica, not for actual depression)...where do we go from here?
I hate when the pain gets this bad- I have a hard enough time getting by during the day (my husband is a tremendous help, though), and I hate that, since i've been on the meds, I can't seem to "find my words" and I can only do ONE THING AT A TIME, without interruption, or I will "lose my place or thoughts"! It's crazy! Long story short.......I once was smart and now I feel sooooo stupid!
It frustrates me....I get snippy, and don't realize that I am snippy, which is causing some trouble between my husband and I. He has been great through all of this, and thinks of MY wellbeing first and foremost....now I find that I can't even have a full conversation with him anymore! I lose my concentration and my thoughts, I get frustrated, so, I just "shut up" anymore. I worry that this will be my life (on meds for the pain that make me fuzzy and nowhere near myself) and it will push him away.
I know that stress is a trigger for some of the pain, as well, but, how do you get rid of the stress when you're stressing over the pain all the time?
I'm already on antidepressants (to work with the Lyrica, not for actual depression)...where do we go from here?
We are (Were) independent people, not used to being helped all the time. We ARE the helpers. The ones family & friends come to for help & advice. The ones in control. Now things have changed. We MUST adapt. Pray. Find a way to keep going. I believe in Jesus & Heaven. One day we will have new bodies.... But we must still live while we are here on Earth. We still have our family & friends...people who love us. Focus on them & Jesus. Just live one day at a time. Live this day.....
God Bless you~