Pulmonary Hypertension Support Group

Pulmonary hypertension (PH) is an increase in blood pressure in the pulmonary artery or lung vasculature, leading to shortness of breath, dizziness, fainting, and other symptoms, all of which are exacerbated by exertion. Depending on the cause, pulmonary hypertension can be a severe disease with a markedly decreased exercise tolerance and right-sided heart failure.

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  • Lvelaz

    Mildly Large Pulmonary Artery

    Hey AllHoping you all are doing good! I found this group doing some researching and looking for some advice. The month of September, I got really sick. Experiencing shortness of breath, dizzy, heart palpiatsions and extra tired. Long story short, with 3 ER trips, doctor visits, tests, I had gotten really sick with what they say as different infections and pleurisy. However my pulmonary artery was...
  • maryjanexo

    How long did it take for you to get a diagnosis ?

    I'm 23 years old, and the doctors can't figure out what's wrong with me. I can't breathe without an inhaler, my Dad also recently passed away from PH... Please help I'm very scared.
  • paigekadiebw

    Pulmonary Hypertension Support

    I've come on here to look for support from others with PH but this support page seems to have lost all of it's people. If anybody else comes on this page to seek support or just somebody to talk to, send an email to paigekadieb@gmail.com and I'll reply as soon as I can, I'd like somebody to talk to also so it would help us both out.
  • Trainteach

    Reaching out

    Hi everyone,I am 35 years old and have a 18 mo old and a wonderful husband. I am a teacher for the deaf here in west palm beach, florida. I was told by my cardiologist that I have an enlarged atruim, elevated pressures in my lung, and regurgitation of mitral as well as tricepid valves. I am scheduled for a cath in about a month. I am reading they have to do a cath before diagnosis. I am having...
  • linnovak

    Portable Oxygen Concentrators

    Does anyone know of a portable concentrator that has a steady flow of at least 5? I found ones with a pulse flow of 3, but none higher than that. My sister has Pulmonary Hypertension and we will be going on a 2 today car trip. It would be much easier to have a concentrator then using tanks. Or is there any car adapter that can be used? Thanks for any info
  • dawnc4t

    Hope for PAH

    Breakthrough could help sufferers of fatal lung disease - News releases - News ...https://www.sheffield.ac.uk news brea...I found this news which sounds very interesting for PAH sufferers it's being researched in Sheffield university in the Uk
  • jbmc777

    Excercise and PH

    I recently had my second echo showing mild dialation of Right Ventricle, and Systoic Pressure of PA of 47. The cardio docs are calling this secondary pulmonary hypertension due to massive pulmonary embolism in February 2014. I go in for my Right Heart Cath next Wed. for more testing. My questions is, "How many people are involved in an excercise routine in treating their PH?" I know some folks...
  • seethur

    What led to your PH diagnosis?

    Hi everyone,I'm wondering what led to the doctors suspecting and testing you for PH? I was diagnosed with Chronic PE and I've been on blood thinners for 3 months but I'm still super short of breath and get a lot of skipped heart beats. The doctors did an echo test when I was diagnosed and it looked normal, but I'm wondering if I need to push to get a right heart catheter test?Best,Ally
  • elektrik

    Surgery in February

    I'll make this my 'official' blog on the subject:So UCSD accepted me as a possible candidate for surgery (my Pulmonologist confirmed they feel they can help me, so it's probably more a matter of 'when' as opposed to 'if).I'm excited nervous and scared all at the same time. more as it comes....
  • elektrik

    So here's a new one...

    Hi guys. Diagnosed with PAH after the Massive Bilateral PEs/DVTs that I had. They put me on Adempas in January since there was no residual clotting material in my lungs to remove and my Mean pulmonary artery pressure was 74 mm Hg. Fast forward to a week ago. I was feeling better (could walk up a flight of stairs, exercise without oxygen, etc) and got my follow-up EchoCardiogram done, thinking...
  • nanuq

    Share your story

    Hi everyone,I'm a writer, and I'm currently working on a novel about a woman with PH. My intention is to bring some awareness and humanity to the disease in the most respectful and genuine way possible. Because of this, I'm looking for actual experiences, feelings, thoughts, and everything in between from anyone touched by this illness in any way.If you would like to share your experience...
  • munchkin24

    My 2yr old has Idiopathic PH

    My daughter was born with Idiopathic PH and has been on Sildenafil and Oxygen at .5L 24/7. I'm hoping that someday she can be without the oxygen.Does anyone know if this is even possible? I would love to take her travelling.
  • pappy45

    Pulmonary Hypertension

    I have Pulmonary Hypertension and on O2 24/7 that helps. I had a right side cath and the wedge pressure was 25 and I am not exchanging enough O2 into my blood, this is from the Pulmonologists view. Saw a Cardiac doctor and thought the problem was in the lung. Well the Pulmonologists differs and said the downward pressure was too high. He is having me do a Pulmonary / Cardiac check that will test...
  • schles

    Research on PAH-$100 Compensation

    Hello,This a great opportunity to discuss your condition with our research company. We're looking to interview you for 60 minutes and will compensate you $100. Schlesinger Associates, a national market research company located in 14 US cities, is looking to speak to:Pulmonary Hypertension (PH) or Pulmonary Arterial Hypertension (PAH) patientsAll must have a pump or inhaler they use for...
  • deleted_user

    how is everyone

    There were some posts about new doctors new tests snd then nothing i know i have been sick and then had a major melt down. I am over the melt down. I have had few of these in my life but they do happen i have had a few in my life and through support and prayer i get through them. I apologize for my whining. I know there are people dealing with more than I do. But as i tell a friend who...