It's very normal to have some pain and discomfort, for a while after your PE, especially the more you start doing. I think the fact that you're trying to do some things like clean and shop is fantastic. I would just listen to your body and rest when you need to. It's hard to know sometimes when you're doing to much and when you need to push it but you'll find the balance. It can take a while to completely recover. You'll be ok.

Hi Loulou, I felt the same way as you. I am now about three months out and just starting to feel better. It takes time, a lot of time. Hang in there, stay positive. You can't rush it.

Thank you both for your kind words, I just feel very alone. I asked the dr about my recovery....like what I should or shouldn't be doing. She didn't really have an answer!!! It annoys me that there isn't really much info out there. Another friend of mine had the same & she is now on holiday & back to work!! I can't even walk the dog, do housework or go shopped without feeling awful & soo tired. I'm just going to listen to my body & hopefully things will improve

It feels very lonely. I felt the same way. The drs have very little answers and there isn't much information out there about recovery. I felt like one of my drs thought I was crazy. The most help I got was from the hematologist, he seemed to have the most information. If you haven't seen one, maybe you should. People who haven't gone through it just don't understand. Hang in there :)

Hi Louloubell,
Im sorry your going through the pain after PE - i was in the hospital February 14th for my PE's and it took me a full month of on and off pain to finally get to the point where I started feeling normal again. The past week and a half I've been doing really well with really no pain at all... It will get better - it honestly takes time and I hated hearing that. Don't push too hard - rest and drink a lot of water, don't think too much about it and stay distracted - you will feel better.

Thank you all...had to go shopping this morning & now I'm done, soo tired pain relief & sleep

Update...I was feeling a bit better, so decided to go back to work for 3 days a wk. (Work at local hotel, just doing the laundry, as I'm a mature student!!) Went in yesterday & felt ok, then started to get pain in my chest & neck & felt quite breathless. Took a rest & took things slowly. Luckily my boss is very understanding & im only doing 2 days now. So rest day today

I also had large pe in both lungs and had pain in back and neck...and also thought I had pulled a muscle. I was warned before about pain in chest because I had embolism in my leg a couple years ago, but no one told me about back pain. I thought it was going to be a waste of time going to the clinic. I know how you feel if I do a little work I'm so tired. The doctor didn't give me hardly any info when I went home.

I know it's soo annoying, they don't tell you anything about recovery. It's up to us to know when we've done too much & you end up in pain again

Hi ya, still in pain (feels like someone is pressing on my chest) & breathless & ive had a cough, when I lie down for about a mth now. Had chest X-ray & echocardiogram, which appears normal. Just waiting for confirmation from the dr. Getting so fed up now

Hi loulou,
Dont rush your recovery. Everyone is different, and the amount of damage you have in your lung there is no surprise you are tired. People don't realise what a huge thing has happened! I am 6 months in and I have only felt normal for about a month. It has been a huge shock to your system, the circulatory system is so important, to disrupt it is a major problem. So don't rush, you'll feel ready when you're getting better.
On a side note, I was prescribed Rivaroxaban which made me feel absolutely exhausted. They switched me to apixaban and I felt better within a few days.
Hang in there, it gets better! Xx

Thank you I'm on rivaroxiban as well. Seeing dr on Monday do perhaps I'll mention it the rivaroxiban & see what he says

This takes a huge toll on your body, so there will be all kinds of discomfort, but give it time, it's just your body tying to heal itself.