Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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swelling ing legs causing unbearable nerve pain in

chicago58
chicago58
on july 6th i had to take a 13 hour round trip bus ride for a va apportionment, it is four and a half hours each way on the bus with two five minute stops. when i got home my legs were about as swollen as they have ever gotten on one of these trips. so the first thing i did was take a water pill and put my feet up for a few days. i don;t know what happened but it set off nerve pain in my feet. i could not step on the ground, or even let the sheets one the beds touch my feet with out screaming . it is like someone is stabbing knives in my feet every time they are touched or touch the ground. this is 13 days later and i am still using the walker , crutches and anything i can to keep as much of my feet off the ground as possible.
the drs just say it set off a fibromyalgia reaction. and not that it has found that spot to expect it to happen often.
has anyone else had this happen?. i have never had pain this bad, every time my feet touch the ground i threw up and it starts a migraine and no amount of pain medicine can touch it,
does anyone have suggestion on how to reduce the pain i am gonna go bonkers if i gotta stay on the couch one more week with my feet up.
any suggestions would be greatly appreciated,
deleted_user
deleted_user
Go to the Dr please and see what is going on.
rmb
rmb
I've had a lot of swelling this past week, because it's been so hot and humid, and my achilles tendon area was so sore in my DVT leg from it. But the pain you're talking about seems above and beyond what's "normal" for swelling. If you have fibro, do you have pain meds for it?
TossNTurn
TossNTurn
Wish I had something helpful to say. Wanted to commiserate that this sounds really horrible!

If you're dealing with fibro too, maybe you should stop by the fibro group and see if anyone there has any suggestions for it.

Best wishes. I'll keep my fingers crossed that the pain starts to ease soon for you!
chicago58
chicago58
i have been to a podiatrist, a nuerolagist and PCP no one has a clue how to ease the pain, my pain med is oxycodone it is not even touching the pain so i am not taking it, ice pack have some effect but the only thing to prevent so far is laying on the couch with my feet up x three weeks. i am so sick of laying down. every time i put my legs down even to do the computer for a while the pain is out of control, i have an appointment coming up with my regular podiatrist whom i have a whole lot more confidence in and hope he can help. my PCP saw me today and saw how painful it is to even touch a toe to the ground. i am so impatient to have my feet heel. my PCP gave me hints on what to say and not say to have a better out come with the podiatrist. i can.t handle this much longer every time i stand up i feel like throwing up.
Ferr
Ferr
I have heard that a lot of people have some luck with Lyrica with Fibro but I am no expert. Sounds like nerve pain and Sounds horrible. I have so much empathy for you as I can't even relate to the kind of pain your experiencing. I rode a bus one time with my daughter across the country. It took 2 1/2 days to make it from Richmond Va to Spokane Wa and when I got off the bus my feet were so swollen i couldn't walk. We did stop for meals and that's about it. I'm lucky I didn't get a DVT or PE way back then. Just recently took a 22 hour car ride one way but we stopped every 2 hours for at least 5-10 minutes so we could all get out and walk around. So much better and no swelling this time. I'd be looking to see maybe a neurologist or maybe a arthritis doctor, they often times diagnose fibro and put patients on meds that are helpful.
Good luck to you my friend. And I'll add you to my prayers for a fast healing.
Hugs
Ferr
deleted_user
deleted_user
Do you use compression socks/stockings, a Rx version? Maybe too painful to put on with Fibro? They seem to help me get through the day and helps keep the swelling down. At PT yesterday the therapist massaged my foot/leg while it was elevated, that seemed to help keep down swelling. Good luck, this sounds awful.
chicago58
chicago58
i love the compression stockings when i can keep them up they really do keep the swelling down to a minimum and the pain substantially reduced. i have four pair i have been measured four that don't stay up so i tried the adhesive they sell and promptly break out in a terrible rash. no fun. so i use them for flying i haven't been using them for the bus i usually have the rash by then. i talked to the nuerolagist and our compromise is i am ordering the knee high it is better than wearing none.
rmb
rmb
Are you still experiencing so much pain right now?
chicago58
chicago58
yes i finally got in with the podiatrist he did a cortisone shot in the worse spot. suggested two things if it comes back in its worse form one is the wheel chair to keep weight off of them and to pursue a spinal from my nuerolagist if they get as bad as they were. i still can barely walk but they are definatley improving i can put weight on one foot so i can use the crutches or the walker and it helps. i just hope it is over soon i want off my nice comfy couch before i grow to be any bigger than i already have.
rmb
rmb
Do they think it's just some kind of inflammation then?
chicago58
chicago58
yes when my legs swelled so massively from the long bus ride it swelled the feet and put pressure on the nerves and even after the swelling went down the inflammation proses was already in full swing and nothing i could do was helping and the podiatrist was right there is no pain medicine that will help as i have already figured out. some relief from pain is ice packs but only some. he wheel chair i know on one appoint ment the facility was so large i had my friend wheel chair me it really was a relief but surely not practical. each doctor that checked all said it will be back i hope they are all wrong i can't andle this a second time.
deleted_user
deleted_user
Hi. Don't know about the swelling in the legs, but sure can relate to the pain in the feet. Feels like you are walking on shards of glass? That IS FM. Used to wake up with that every morning, but for some reason, the past few years, I have NOT been bothered by it. The FM isn't as bad as it was, though.

I think I blame a LOT of things on FM, including the pain in the calf that I had. Never dreamed it would be a blood clot.

Sorry, I am new here and haven't yet posted before.
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