Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
LuvAmyLs1984
I just got out of the hospital a few days ago. I have a PE I was in the hospital for 2 1/2 days. They are not sure what caused it yet, I am only 27 years old, so they are a little confused, but tests will tell hopefully. There isn't anything that runs in my family so its not from there, I was the birth control patch, and I smoked 1-1 1/2 pks of cig. a day. I also didn't eat the best, lots of comfort foods. Anyway, since I have gotten out of the hospital, I have not fully quite smoking, I am trying so hard. I have cut back to like 5 cig. a day. I am so scarred that I am going to cause further damage and fast. It is so hard to quite smoking, I'm trying, and I am going to do it. Am I in a lot of danger, or am I okay, I have alomost quite and I am almost there, but it is hard, Please pray for me. I am so scarred and worried about this, about having a PE and all. I haven't had any pains for a day or 2, now today I have a little, but ever since I started researching it all. I see a symtom and then I all of asudden feel that symptom, then it goes away. I am so worried that it is making me sick. I am eating healthier now to, I mean it is going to take me some time to be a total health freak, but I hope to get there soon.
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You're going to be ok. When you start researching stuff, it may bring on some anxiety, which can makes you feel short of breath, dizzy, and kind of hyper focused on how you feel.
Sounds like the PE could be from the birth control, and smoking is bad when you're on that kind of bc so that just makes the risk higher for clotting. So, assume you are no longer on that birth control right? Listen, it's never good to smoke, but you know that, and it's obvious you're trying to quit. I don't know if it will make your PE situation worse, but it may effect how well you feel you can breath over all. You're lungs have been through a really trying event. You may want to talk to your doc about if there's something you can take to help to quit smoking. I congratulate you on cutting your smoking by so much! Feel good about that. And just build from there. I hope folks who quit smoking after the PE can offer you some encouragement.
Don't try to make all these big life style changes at once, like quitting smoking, eating better etc. Diet didn't directly cause your PEs, although it's good to start eating healthier because that just makes you feel better overall, but trying to change your diet, plus quitting smoking at the same time is a LOT. It's easy to beat yourself up over both. Start trying to go for walks (if your doc says ok), relax, get your mind in a good place. Things will start to fall into place. Be kind to yourself. Recovery can take a while, so try not to worry too much.
It is likely not cancer. There are so many of us out here who either clotted from birth control, or it was just a fluke that we clotted and no one could determine why. The good thing is they caught it and you're going under treatment. And once you're under treatment, you really made it through the worst in terms of immediate danger.
It's all good. Keep telling yourself that. Focus on a moment at a time. And try not to research stuff too much. It'll make you crazy with worry and doubt. Spend that time you're doing research on resting and being with your family, instead. It's a much more positive and productive way to spend your time.
And come to this site, because there is lots of support here for you.
I also have a young child (she is 6). I'm also in the panic phase, but I just got on a dose of ativan and am doing AVE therapy (It's hokey, and I can explain it in a later post, but I was surprised at how relaxed I was). I have been back to the ER 7 times since my release from the hospital, most of which was due to anxiety attacks brought on by REAL dizziness (I have now been diagnosed with a case of labyrinthitis that makes the world spin when I read - lovely, a teacher who gets dizzy when she reads. I'll be glad when that clears up in 3-6weeks!!!).
I never smoked and have never used birth control. No DVT's, no clotting disorders.
Who knows why I clotted, except that I am a clotter. Maybe for you, it was the BC combined with smoking. Who knows.
I cannot tell you not to be scared, because I was, and I learned a lot from it. I will tell you what my PCP told me: We are mothers, and first and foremost, we worry about our children. However, we need to understand that if we don't take care of ourselves, we cannot take care of them.
So take care of yourself. Quit smoking (my mother credits me with helping her stop smoking when I was 5. I saw a public service announcement about what cigarettes could do to my lungs, and I destroyed every one I found. She said it was very effective, and too expensive to replace what I had destroyed.)
I'm doing what I can to take care of me. I'm trying to lose weight, and I have my 6-year-old helping me. I eat whenever she eats, and I eat what she eats and the amount she eats (she is NOT a chicken nuggets and french fry kid - yesterday, she requested sushi and a cuke and tomato salad, so she is not the norm) . If I'm thinking of going for a second helping, she says, "Mom, remember, are you really hungry?" Just as I coached her. Its gives me a minute to stop and think. I've lost 25 pounds since late February, so it is working.
I didn't want to take anti-anxiety meds, either. When my doc put me on ativan (I hate taking pills for anything), she said, "This is not a permanent thing. This is to help you get past this very stressful time. Think of it this way: If it were for your PE, would you take them? Anxiety is no less real."
So listen to your body. Ask your docs about anything that concerns you. Come to us for help when the rest of the world just doesn't understand what your body is going through. We're here to help.
Like RMB says, continue the fight to reduce the smoking and focus your energies on getting well. There are way to many things we can worry about happening, and frankly, most of them won't. Life is too short. Enjoy every sandwich! (right, rmb?)
We're here for you.
Ch1, you sound positive. I know you were struggling for a bit, so this really is soooo good to see. I'm really happy for you that it seems like you're turning a corner. And I love that your kid loves Sushi!
I'm Pete and I was smoking 20 a day before I was admitted to hospital. When my Doctor told me that I clots in my lungs I thought that they would need all the help that I could give them to recover. As my body fought off the grim reaper I thought that the least I could do for it would be to quit smoking.
i am pleased that I did as I have found that now the blood clots have dissolved I am breathing much easier than before the clot. Also, I am happy with the freedom as cigerettes no longer control my life.
You have been through a lot and I appreciate that it is not easy however, trust me, it is well worth fully quitting.
I wish you a speedy recovery and good luck in quitting.
Good luck!!
I too, was/am a smoker. I was in the hospital for 8 days with PE's and told myself, that's it. I'm done. No more smoking for me. I turned down the nicotine patch while there b/c I just wanted to get through it and what better place than in the hospital! Well, that was great right up until I got home.
It didn't take me long to give in and have a cigarette. Then I felt so badly about myself, wondering how I could even think of smoking again after what had just happened. The worse I felt about myself, the more anxiety I gave myself, and the more I wanted to smoke.
The fact that you are down to 5 is fantastic! Good for you! Keep going and trying, you will get there. My mother was a smoker and tried quitting over and over again and one day she was sucessful! It has now been over ten years for her!
Best of luck to you!
If your child had a lump, you'd be breaking down the door to see a doctor, so I'm not sure I get why you're not doing the same for yourself.
I know what you're going through, I really, really do. My motivation to quit smoking was when I started having sharp pains under my shoulder blades and rib cage - my first thought was lung cancer, because I'd smoked a pack a day for 28 years. Paralyzed with fear and sure that this was the beginning of the end, I waited a week before finally going into the doc - and it wasn't lung cancer.
Smokers have it so drummed into them that they are going to get cancer, that every symptom you have is assumed to be THE BIG C. Women have so much awareness of breast cancer, that every lump is assumed to be THE BIG C. And we panic, and let the "what if's" take over. We go on the internet to research symptoms hoping ours will just go away in the meantime. Denial and fear are fed by procrastination though, and let me tell you, in the end it makes no difference how deep your head is buried in the sand - you can only wait so long before you HAVE TO brave up and go see the doc.
Thoughts to help you "grow a pair":
1). You are a mature, responsible adult woman who can take charge of her own health, for herself and her family's sake (repeat this over and over until you believe it).
2). Ignorance may be temporary bliss, but Knowledge is permanent power: Only when you know what's happening (if anything) can you take action to remedy the situation. Once you take the first step - going to the doc - you take the power to influence the outcome.
and my favorite, short and sweet:
3.) Fear is your enemy.
By the way - It's going on 3 years since I last smoked. If I can do it, anybody can. My advice? You need to know it's EASIER than people tell you, than doctors tell you, than the media tells you. It doesn't hurt to quit - you'll have moments of uneasiness that are either amplified by your thoughts or stomped out by diversions. My best trick is huffing your favorite scent. I bought a little bottle of Lavendar essential oil, and would put a few drops in my hand and cuff my hand over my nose and breath in deep.
(Halls cough drops are great too)
And yes, I am YELLING IT. I just came back from the hospital where my mother is in ICU hooked up to a ventilator because she cannot breathe. She has lung disease, heart disease, high blood pressure and diabetes. Yes, she smoked for 40 years.
I also had smoked of 16 years and quite COLD TURKEY 21 years ago. You can do it. I had my PE (double in both lungs) in January and was recently diagnosed with sleep apnea.
I am here to tell you that lungs and heart are not something to screw around with. You are young and most things at your age are reversible.
Stay strong, look forward and surround yourself with people that will support.
Good luck and god bless.