Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
bigjun
Hello fellow Pulmonary Embolism survivors, I know Rowdy Roddy Piper died a week or so ago, but I just read what he died of. He died of an Pulmonary Embolism, which caused him to have a heart attack in his sleep... to just think that couldve happen to me or any of us that woke up the day to find out that we had an PE. I have been buggin about this since Ive read about it....
But Im doing good though, since I had the PE at the end of this past May. Im working out 4-5 days a week. Im not quite 100%, but Im getting there. I hate taking Xarelto because Im tired all the Damn time. The Blood doctor wants me to stay on the Xarelto until the end of November, since it will be 6 months and she wants me to take a D-Dimer test about a week before I see her. If the D-Dimer is normal I can come off the Xarelto.
I hope everyone is taking acre of their selves. Eventually you will get better, it just will take some time....
But Im doing good though, since I had the PE at the end of this past May. Im working out 4-5 days a week. Im not quite 100%, but Im getting there. I hate taking Xarelto because Im tired all the Damn time. The Blood doctor wants me to stay on the Xarelto until the end of November, since it will be 6 months and she wants me to take a D-Dimer test about a week before I see her. If the D-Dimer is normal I can come off the Xarelto.
I hope everyone is taking acre of their selves. Eventually you will get better, it just will take some time....
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
About week after I had my PE, a friend of mine told me that she had just had another friend die suddenly from a PE, so she fully understood the seriousness of what happened to me. He was early 30's went to an Urgent Care center with complains of leg pain and shortness of breath. They dismissed him, and he died the next day. :(
Most people never get what it means to be a mortal being, what it REALLY means, which is that whether it's today, tomorrow, or years down the rode, we're all going to freakin' die somehow, some way, for real. And so understanding that on a profound level, which people who had critical clots and who were aware they were in trauma the entire time it was happening, gasping for air, saying goodbye to their loved one for what they think is the very last time which is what happened in my case, you become more comfortable talking about your mortality, your loved ones mortality, more aware of your relationships with people, more aware of the life you're living in general, more comfortable accepting the inevitable.
My PEs were in 2007 and I still feel this way; I still feel like death, while concerning and not something I want, is a bit demystified for me now. It doesn't quite freak me out the way it used to.
Everything is how you choose to see it.
I had an accident where I was almost decapitated in a motor vehicle in 2008. That was a much more traumatic experience for me than the PE's. Whenever I drive in rain and feel the rear wheels slip I almost go into a small panic attack. It brings me right back to that day. I know what immortality is. That event only lasted maybe 15 seconds, and It still haunts me to this day. The hardest thing about surviving a PE is knowing that death was coming from within and not from an external event. We all expect that some type of external event can take us out at any point in time, but we never think about or own bodies going haywire. Once you open up Pandora's box you can't close it back up again. It changes you for the rest of your life.
My critical care doctor who treated me while in the ICU died a couple of months after my PE. A tire came off a semi truck as he was driving home on the freeway from work and smashed into his windshield, killing him instantly. I've told that story here a few times about because it still affects me, more than my PE. When I was admitted, this doctor took my hand and sat at the edge of my bed (such a compassionate doctor), and said how lucky I was, that someone was watching over me, and that " life changes in an instant." For him to die in such a weird manner, in an INSTANT... ok, that is something that I'll never forget and I'm so grateful it's still with me, showing me things, teaching me things.
But like I said, I think it's just how you look at it. No right or wrong answers, but I think everyone has to sort of find a way, when they're ready and able, to embrace their good fortune after a PE, to be ok with being one of the lucky ones and to accept their bodies and all its flaws as still a wonderful piece of machinery.